Long COVID with fatigue and brain fog, improved at 18 months then relapsed
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Aug 2023
In their words
- Condition: Long COVID
I clearly had long Covid confirmed by a doctor.
In context ↗ - At worst: Mild
I still clear easily 8,000 to 24,000 steps a day.
In context ↗ - Now: Relapsed
Things are back to normal LC (or maybe even worse) this disease is so frustrating.
In context ↗ - Began after: COVID
I still got Covid in early (like February early) in 2022.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
A 30-year-old developed long COVID after a COVID-19 infection in February 2022, with fatigue, weight gain, brain fog, lost smell and severe mental health problems including suicidal thoughts. Bloodwork was normal. After about eighteen months mental health and desire to socialise improved, but they still struggled with fatigue and weight; about ten days later fatigue was taking over and they said they were not better after all. They were walking 8,000 to 24,000 steps a day.
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What they tried
Also tried
Their words about each treatment
- J&J vaccine and Moderna booster · Not said
I got J&J ... and I got Moderna booster. Vaccines were fine (other than J&J a lil I guess)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2022 | COVID-19 infection, then long COVID confirmed by a doctorI still got Covid in early (like February early) in 2022.In context ↗ | Mild |
| 2022 | severe mental health crisis, paranoia, brain fog, fatigue, weight gain, lost smellI struggled severely with my mental health after Covid. I thought about suicide all the time.In context ↗ | Mild |
| late July 2023 | mental health and desire to socialise suddenly much better, without medical help; fatigue and weight remainedI felt like a cloud has lifted from my head ... I still clear easily 8,000 to 24,000 steps a dayIn context ↗ | Mild |
| early August 2023 | fatigue returned and took over, back to normal long COVID or worseliterally posted thinking I was doing better and fatigue is taking over my life. Things are back to normal LC (or maybe even worse)In context ↗ | Mild |
| August 2023 | still not betterI’m not better after all. Sadly.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Loss of smell or taste
I lost my smell during Covid but I would randomly smell bleach ... I still randomly smell bleach here and there
In context ↗ - Brain fog
I had severe paranoia. Brain fog.
In context ↗ - Anxiety & low mood
I thought about suicide all the time. I felt social anxiety as an extrovert. I had severe paranoia.
In context ↗ - Sleep problems
insomnia and low lung capacity to say the least
In context ↗