ME/CFS with memory problems and crashes, somewhat better with Wellbutrin
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I hope you can find something that will help you, MECFS is so hard already!!!!
In context ↗ - At worst: Moderate
I still need to be on total rest ... it's really helpful for me and my carers
- Now: Somewhat better
My room has also transformed over time to better support my needs since getting sick and it actually makes me really happy to feel like I can function better.
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
An ME/CFS patient who has carers and uses a whiteboard for an out-of-sight, out-of-mind memory problem. Her heart rate stays elevated during crashes, which she uses to judge whether she can return to normal activity or needs total rest. She takes Saccharomyces boulardii with antibiotics to prevent yeast overgrowth. Wellbutrin helped her feel more like herself and would be the last prescription she would drop.
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What they tried
What they credit
Also tried
Their words about each treatment
- Saccharomyces Boulardii · Helped
I always take it when I take antibiotics and I believe it prevented yeast overgrowth
In context ↗ - antibiotics · Not said
I always take it when I take antibiotics
In context ↗ - total rest · Not said
I use it as an indicator of whether I'm ok to go back to "normal" activity or if I still need to be on total rest.
In context ↗ - Timothy and the Bateman Horne support group · Helped
Seconding Timothy and the Bateman Horne support group, they have helped me so much.
In context ↗ - Wellbutrin · Helped
Wellbutrin has helped me a lot, it made me feel a bit more like 'myself'.
In context ↗ - Lexapro · Not said
I'm also taking Lexapro (was already on Lexapro before getting sick for perimenopausal rage).
In context ↗
Approaches: Other antidepressants
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | onset of ME/CFS, date not givenI'm also taking Lexapro (was already on Lexapro before getting sick for perimenopausal rage).In context ↗ |
| 2026-07-27 | adapted her room to support her needs and felt she could function betterMy room has also transformed over time to better support my needs since getting sick and it actually makes me really happy to feel like I can function better.In context ↗ |
| 2026-09-19 | Wellbutrin made her feel a bit more like herselfWellbutrin has helped me a lot, it made me feel a bit more like 'myself'.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
My heart rate stays elevated during a crash
In context ↗ - Brain fog
otherwise I have a real 'out of sight/out of mind' problem
In context ↗ - Gut problems
having had a past history of it
In context ↗
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