ME/CFS with crashes and brain fog, somewhat better with D-ribose and medications
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 20 years
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
I got sick at 15 too and am 35 now been a lot of tough year's but a lot of good ones
In context ↗ - Now: Somewhat better
I have finally hit a combination of meds that have really been helping and this is the best I have felt in over a decade
In context ↗
Summary
Mrhappymuffin got ME/CFS at 15 and was 35 in 2023, roughly 20 years ill, with crashes and brain fog, and school was hard. D-ribose shortened their crashes and gave a bit more stamina, which they paired with BCAA and ATP. By August 2023 a combination of medications had them feeling the best they had in over a decade, though they still advised pacing and listening to their body.
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What they tried
What they credit
Also tried
Their words about each treatment
- d-ribose · Helped
the D-ribose is very helpful for my fatigue ... I have found d-ribose helps crash recovery
- BCCA with ATP · Helped
I also pair it with BCCA with ATP which has a more immediate effect.
In context ↗ - pacing · Not said
Remember to listen to your body and try to pace which is hard.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 19 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 15 | got sick at 15I got sick at 15 too and am 35 nowIn context ↗ | Not stated |
| 2022-05-05 | in school for a 3rd attempt, taking d-ribose and BCAA with ATPI'm in school too for my 3rd attempt. ... the D-ribose is very helpful for my fatigueIn context ↗ | Mild |
| 2023-08-03 | best they had felt in over a decade on a combination of medsI have finally hit a combination of meds that have really been helping and this is the best I have felt in over a decadeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Good luck and brain fog sucks.
In context ↗ - Post-exertional malaise
I have found d-ribose helps crash recovery.
In context ↗
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