ME/CFS
Outcome unclear
ME/CFS with brain fog and orthostatic intolerance, early Mestinon dosing, unclear effect
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
post-viral issues
In context ↗ - Began after: another virus
post-viral issues
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They described suspected dysautonomia/POTS and post-viral issues with brain fog, cognitive shutdown, lightheadedness or swaying when upright, visual overstimulation, fatigue and orthostatic intolerance. They had recently started Mestinon, 15 mg in the morning and 7.5 mg later, and were in very early titration. So far they had no dramatic clear-head effect, only sometimes feeling more stable or awake and other times weird or tired in the head.
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What they tried
Also tried
Their words about each treatment
- Mestinon · Not said
currently 15 mg morning + 7.5 mg later in the day, very early titration
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | post-viral issuespost-viral issuesIn context ↗ |
| 2026-05-12 | started Mestinon, early titrationI recently started Mestinon ... very early titrationIn context ↗ |
Adverse events
- Mestinon / pyridostigmine“sometimes maybe a bit more stable/awake, other times just kind of weird or tired in my head” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
lightheaded/swaying when upright ... orthostatic intolerance
In context ↗ - Light & noise sensitivity
visual overstimulation
In context ↗