Pretty severe long COVID with POTS and MCAS, nearly back to normal after graded exercise
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I had pretty severe post covid in 2022 (pots mcas dysautonomia, neurological stuff)
In context ↗ - Now: Near normal
I’m basically back to normal within 12 weeks ... my mcas which is really the biggest issue for me
In context ↗ - Began after: COVID
I had pretty severe post covid in 2022
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Badger 96251 developed long COVID in 2022 with POTS, MCAS and dysautonomia, described as pretty severe, and took about a year to feel better. A second infection in 2024 was fine after Paxlovid. A June 2026 reinfection was as bad as the first, but they were basically back to normal within 12 weeks. They credit extremely graded exercise, acupuncture, supplements and doctors treating their MCAS, still their biggest issue.
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What they tried
What they credit
Their words about each treatment
- paxlovid · Helped
I got it a second time im 2024 took paxlovid and was fine
In context ↗ - extremely graded exercise · Helped a lot
extremely graded exercise and acupuncture have helped me more than probably anything else I have done
In context ↗ - b complex · Helped
Some of the supplements and meds I have taken have also helped (b complex, d, coq10, h1 h2 blockers and colchicine)
In context ↗
Approaches: H1 antihistamines · H2 blockers · Alternative therapies · Antivirals · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | long COVID with POTS, MCAS and dysautonomiaI had pretty severe post covid in 2022 (pots mcas dysautonomia, neurological stuff) it was absolutely horribleIn context ↗ | Severe | |
| 2023 | felt better after about a yearit was absolutely horrible and took like a year for me to feel betterIn context ↗ | Not stated | |
| June 2026 | COVID reinfection, as bad as the firstI just got reinfected in June! And it was pretty bad similar to the first timeIn context ↗ | Severe | |
| September 2026 | basically back to normal within 12 weeksI’m basically back to normal within 12 weeksIn context ↗ | Near normal | Graded exercise therapy (GET) |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I had pretty severe post covid in 2022 (pots mcas dysautonomia, neurological stuff)
In context ↗ - Mast cell (MCAS) & allergies
I also found some doctors who are treating my mcas which is really the biggest issue for me
In context ↗
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