ME/CFS
Mild → no benefitNeeds ongoing treatment
ME/CFS with POTS, remote work and afternoon rests; amitriptyline did nothing
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Sep 2025
In their words
- Condition: ME/CFS
The internist i saw threw me 10mg pills as a "frontline treatment for CFS" and almost didnt believe me when it didnt work...
In context ↗ - At worst: Mild
I cant work from the office (I guess too much stimulus or im too animated) but from home im mostly tolerating.
In context ↗ - Now: No benefit
I can manage from home on most days as long as i keep my weekends chill
In context ↗ - Began after: stress or burnout
I mean mine was stress induced (year of constant fight/flight with no infection in sight)
Read from 12 of their posts and comments; links to the 10 this page draws on
Summary
Moon 76843 dates the start of their ME/CFS to a year of constant stress plus a COVID vaccination. They have POTS and switched to remote work because office stimulus was too much; they manage from home most days but lie down in the afternoons and keep weekends quiet. Amitriptyline 10 mg did nothing for energy or sleep; melatonin made them drowsy but sleep still took hours.
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What they tried
Also tried
Their words about each treatment
- remote work agreement · Helped
The best thing I did was get a remote work agreement.
In context ↗ - caffeine · Helped
It helps to kickstart my morning but in the afternoon im dead no matter what.
In context ↗ - CBD oil vape · Helped
I only have a CBD oil vape, i find it soothing when my mind's running and i cant relax to fall asleep
In context ↗ - amitriptyline · No change
I was on 10mg amitriptyline as a "first line CFS treatment" and it did nothing for me. No energy, no better sleep, nothing
In context ↗ - melatonin · Helped
Melatonin makes me drowsy but it still takes me like 5hrs to actually fall asleep
In context ↗ - CoQ10 · No change
Nothing at all at 200mg a day
In context ↗ - fitbit hr monitors · Helped
I find the fitbit hr monitors tobe amazing but i dont know about the alerting, i just remrmbrr to check mine when im standing to walking around
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | illness triggered by a year of stress and a COVID vaccinationI believe severe stress + the covid vaccin is what triggered things for me in the firat place.In context ↗ | Not stated |
| 2024-01-03 | got a remote work agreement and could tolerate work from homeThe best thing I did was get a remote work agreement. I cant work from the office (I guess too much stimulus or im too animated) but from home im mostly tolerating.In context ↗ | Mild |
| 2025-04-11 | managing work from home, keeping weekends quietI can manage from home on most days as long as i keep my weekends chillIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
it still takes me like 5hrs to actually fall asleep even though i feel like I'm dying
In context ↗ - POTS & dysautonomia
got an accomodation due to POTS mostly
In context ↗ - Light & noise sensitivity
the stimulus of in-office kills me
In context ↗