CFS stopped her working; improved a little with massage and aqua fitness, then relapsed
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
exercising will cause a CFS flare up
In context ↗ - At worst: Moderate
I no longer work there due to this darn illness so I have to beg my husband for a massage every once and a while just like you!
In context ↗ - Now: Relapsed
I'm currently in your state, and I understand everything, but there have been times in the past that I've recovered a little for many months.
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Stream 21807 posted from 2019 to 2025 about CFS that had already stopped her working. She found regular massages and deep tissue helped, sometimes for two to three days after a day of feeling worse, and gentle warm-water aqua fitness eased her pain when kept to one class a week. Two classes in one week caused a bad flare. Pramipexole and acupuncture did nothing. By 2025 she said she had at times recovered a little for many months.
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What they tried
What they credit
Also tried
Their words about each treatment
- deep tissue massage · Helped
I love deep tissue massage. Feel crappy the next day but then feel well for 2-3 days after.
In context ↗ - cold pool · Helped
I love being in a cold pool. I find it helps me as well.
In context ↗ - aqua fitness · Helped
the movements are nice and gentle ... I find it has helped my pain a little.
In context ↗ - acupuncture · No change
Did acupuncture too. No effect for me either.
In context ↗ - exercise · Worse
I have high blood pressure so I need to exercise to lower it, but exercising will cause a CFS flare up.
In context ↗ - pramipexole · No change
I’ve tried pramipexole and it did nothing for me.
In context ↗
Approaches: Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | CFS onset before 2019, already unable to keep workingI no longer work there due to this darn illnessIn context ↗ | Not stated |
| 2019-02-27 | regular massages through work health coverage helped a lotI had health coverage at my old job that included regular massages (approximately every 3 weeks to a month I got one ) and it did wonders for me.In context ↗ | Moderate |
| 2019-03-01 | bad flare after two aqua fitness classes in one weekI tried to do two classes this week which was way too much for me so now I am in a terrible flare up.In context ↗ | Moderate |
| 2019-05-08 | deep tissue massage gave a few good days after feeling crappyI love deep tissue massage. Feel crappy the next day but then feel well for 2-3 days after.In context ↗ | Moderate |
| 2025-04-19 | still ill, only brief partial recoveries in the pastI'm currently in your state ... there have been times in the past that I've recovered a little for many monthsIn context ↗ | Not stated |
Adverse events
- “I tried to do two classes this week which was way too much for me so now I am in a terrible flare up.” In context ↗ Made symptoms worse
- Massage“Feel crappy the next day but then feel well for 2-3 days after.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have high blood pressure so I need to exercise to lower it, but exercising will cause a CFS flare up.
In context ↗ - Pain & fibromyalgia
I find it has helped my pain a little.
In context ↗ - Anxiety & low mood
I'm currently in your state, and I understand everything
In context ↗
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