ME/CFS
No benefitIll for 11 years
ME/CFS for over a decade with brain fog and severe migraines, no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 11 years
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
I've had chronic fatigue sitting on my mychart, 'entered in 2012'
In context ↗ - Now: No benefit
never figured it out, back to 8/10 fog
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Badger 87876 has had chronic fatigue recorded since 2012, over a decade, with brain fog rated 8/10, restless sleep, central sleep apnoea and severe migraines. They have cycled through stimulants, antidepressants, caffeine, nootropics and 2-3k dollars of supplements. Potassium citrate briefly cut the fog, and a short night with 5-HTP coincided with fog at 2/10 before it returned. BiPAP made things worse.
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What they tried
Also tried
potassium citrate· Helpedbipap· Worsesupplements· Not saidstimulants· Not saidantidepressants· Not saidcaffeine· Not saidnootropics· Not said5htp· Not saidsumatryptin· Not said
Their words about each treatment
- supplements · Not said
I've probably spent 2-3k $ on supplements.
In context ↗ - potassium citrate · Helped
I filled up my water bottle with 3g potassium citrate (1g potassium) ... the fog is substantially less
In context ↗ - stimulants · Not said
I've cycled through everything, stimulants, antidepressants, caffeine, nootropics, idk anymore.
In context ↗ - bipap · Worse
my bipap hasnt helped at all, just makes it worse, so I didnt even use it last night
In context ↗ - 5htp · Not said
took 5htp late in the evening
In context ↗ - sumatryptin · Not said
sumatryptin, which I usually take when they get extremely bad
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2012 | chronic fatigue recorded in medical chart, never resolvedI've had chronic fatigue sitting on my mychart, 'entered in 2012' and it hasnt changedIn context ↗ | Mild | |
| 2022-12-17 | brain fog substantially less after drinking potassium citrate in waterMy sleep was the usual restless crap sleep, but wow, the fog is substantially less.In context ↗ | Mild | Potassium |
| 2022-12-20 | brain fog down to 2/10 for a day after short delayed sleep, 5-HTP and diet sodaToday the brain fog is only 2/10, vs. a normal 8/10In context ↗ | Mild | |
| 2022-12-20 | brain fog back to 8/10, cause of the good day never foundEDIT: never figured it out, back to 8/10 fogIn context ↗ | Mild | |
| 2023-02-14 | still ill; suspects sleep apnoea, breathing machines only made it worseI think it's sleep apnea related, but machines only have made it worseIn context ↗ | Mild |
Adverse events
- CPAP and sleep apnoea treatment“my bipap hasnt helped at all, just makes it worse ... machines only have made it worse” Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
Today the brain fog is only 2/10, vs. a normal 8/10
In context ↗ - Sleep problems
My sleep was the usual restless crap sleep
In context ↗ - Headaches & migraine
one of my worst all day migraines
In context ↗