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ME/CFS No benefit

ME/CFS with severe stomach pain and PEM; diet cuts no relief; tried Buddhism and meditation

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Mar 2026
In their words
  • Condition: ME/CFS34 Y/o fm diagnosed with FM and ME/CFS with severe abdominal pain In context ↗
  • Now: No benefitfor the last 2 years specifically, I’ve been having pains that feel like someone is on the inside of my stomach trying to saw me in half. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A 34-year-old woman with ME/CFS and fibromyalgia described two years of near-daily stomach pain so severe she feared eating, which set off PEM cycles. Cutting out coffee, most dairy and most fried and processed foods brought no relief. By March 2026 she still had frequent suicidal thoughts, having overdosed years earlier, but said Buddhism and meditation helped her tremendously.

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What they tried

Their words about each treatment
  • cutting out coffee, most dairy, most fried/processed foods · No changeI’ve had to cut out coffee, most dairy, most fried/processed foods, and still no relief In context ↗
  • medication for pain and depression · Not saidI’m very medicated pain wise and depression wise In context ↗
  • Buddhism and meditation · Helpedpracticing Buddhism and meditation have helped me tremendously In context ↗
  • smoking weed · Helpedbuying new plants and smoking weed all calm me down In context ↗
  • deleting social media · HelpedI deleted all my socials too aside from Pinterest and Reddit ... I second that it helps my nervous system so much In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2026-01-17two years of near-daily severe stomach pain, afraid to eat, PEM cyclesI’ve been having pains that feel like someone is on the inside of my stomach trying to saw me in half. In context ↗
2026-03-19Buddhism and meditation eased her dark thoughtspracticing Buddhism and meditation have helped me tremendously In context ↗Meditation, yoga, breathwork
2026-03-19still suicidal thoughts and pain; meditation, baths, plants and cannabis calm herI still battle with suicidal thoughts quite often In context ↗

Symptoms mentioned

Their words about their symptoms
  • Gut problemsI’ve been having pains that feel like someone is on the inside of my stomach trying to saw me in half. In context ↗
  • Pain & fibromyalgiaI 34F also have been diagnosed with fibromyalgia, severe b12 deficiency, anemia, and mthfr gene mutation. In context ↗
  • Post-exertional malaiseWhich in turn puts me into PEM and it cycles again and again. In context ↗
  • Anxiety & low moodI still battle with suicidal thoughts quite often In context ↗

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Asking aboutHarbor 98362’s story

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