ME/CFS
Outcome unclear
ME/CFS with lower spine and hip pain, wheelchair after a walking stick; took Elvanse for ADHD
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
my CFS & CRPS is based in my hips
In context ↗ - At worst: Mild
If I can do an hours gym 3x a week & withstand PEM I'm sure you can
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user with CFS and ADHD described pain mainly in their lower spine and hips and used a wheelchair after first using a walking stick. They said they could do an hour at the gym three times a week and withstand PEM, and slept up to 15 hours in 24 when short of sleep. For ADHD they took Elvanse 30 mg, having stopped Concerta because it upset their stomach.
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What they tried
Also tried
Their words about each treatment
- Concerta · Worse
i was on Concerta (can't remember the dosage) before that but it didn't agree with my tummy
In context ↗ - Elvanse · Helped
I'm on Elvanse 30mg but i was on Concerta (can't remember the dosage) before that but it didn't agree with my tummy and I'm much more settled on Elvanse now
In context ↗ - an hours gym 3x a week · Not said
My exercises are mainly upper body based as my CFS & CRPS is based in my hips
In context ↗ - sleeping for 6 months straight · No change
I've done it and nothing happened
In context ↗ - naps · Helped
Nasty are the only thing that keep me going some days
In context ↗ - wheelchair · Helped
Omg so much, yes I kinda cheated going from 0-60mph as I had a walking stick before my chair
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | CFS (and ADHD) diagnosed; trigger not describedAdhd & CFS diagnosed here 😁In context ↗ | Not stated |
| 2023-08-16 | doing an hour at the gym three times a week despite PEM; moved from a walking stick to a wheelchair for outingsIf I can do an hours gym 3x a week & withstand PEM I'm sure you canIn context ↗ | Mild |
Adverse events
- Methylphenidate (Ritalin, Concerta), Lisdexamfetamine (Vyvanse, Elvanse)“i was on Concerta (can't remember the dosage) before that but it didn't agree with my tummy” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I can do an hours gym 3x a week & withstand PEM I'm sure you can
In context ↗ - Pain & fibromyalgia
my pain is mainly in my lower spine & hips
In context ↗ - Sleep problems
Myn being lack of sleep I can do up to 15hrs sleep per 24hrs
In context ↗