ME/CFS
Outcome unclear
ME/CFS brain fog and PEM, low-dose naltrexone helped brain fog
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2022
In their words
- Condition: ME/CFS
I don't think it aggravated my PEM but I was already in a PEM downslide back then
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
The user, posting in r/cfs, reported brain fog and post-exertional malaise, including a PEM downslide when their mind would not settle. Low-dose naltrexone helped brain fog first, the day after a 1.5 mg starting dose, with a more general effect at 4.5 mg about three months after starting. How ill they were overall and when their illness began are not described.
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What they tried
Also tried
Their words about each treatment
- mammalian dive reflex using cold water · Not said
A counselor introduced me to the mammalian dive reflex using cold water at a time when I really couldn't get my mind to settle down
In context ↗ - deep breathing and the usual mindfulness stuff · Not said
despite trying things like deep breathing and the usual mindfulness stuff
In context ↗ - LDN · Helped
Yes, brain fog was the first thing LDN helped me with.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| before August 2022 | in a PEM downslide, mind would not settleI was already in a PEM downslide back then and haven't tried it again in monthsIn context ↗ | |
| 2022 | brain fog started to lift on LDNit seemed to get better the next day at my starting dose of 1.5mgIn context ↗ | Low-dose naltrexone |
| 2022-08-22 | more general effect at 4.5 mg after about three monthsLDN seemed to generally have more of an effect though at 4.5mg around three months after starting for meIn context ↗ | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Yes, brain fog was the first thing LDN helped me with.
In context ↗ - Post-exertional malaise
I was already in a PEM downslide back then
In context ↗ - Anxiety & low mood
I really couldn't get my mind to settle down despite trying things like deep breathing
In context ↗