ME/CFS
Mild → no benefit
Exhausted daily since youth with suspected ME/CFS, still tired and using a cane
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- since youth
- Last post
- Nov 2024
In their words
- Condition: ME/CFS
I most likely have CFS
In context ↗ - At worst: Mild
only working a part time job (that I love thank fk) spending all my spare time trying to do as little as possible at home
In context ↗ - Now: No benefit
I still feel tired everyday and getting out of bed is just a task everyday
In context ↗ - Began after: nothing they could name
I've always felt exhausted, full stop.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Island 61452, undiagnosed but suspecting ME/CFS, described feeling exhausted since youth, with regular burnout spirals, depression and suicidal ideation after pushing past their limits. They had failed courses and lost jobs, and still felt tired daily, finding it a task to get out of bed. They had started using a cane and working only part-time, taking frequent breaks, while doubting they deserved the support.
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What they tried
Also tried
Their words about each treatment
- stimulant meds · No change
the subsequent prescription for stimulant meds, I've further solidified my opinion that I have some stamina disorder since I still feel tired everyday
In context ↗ - cane · Not said
So I've started using a cane
In context ↗ - frequent breaks and keeping activity minimal · Not said
taking frequent breaks, only working a part time job (that I love thank fk) spending all my spare time trying to do as little as possible at home
In context ↗ - gyms · Worse
always tried to push myself like I thought everyone else was doing, and failing despite this leading to regular burnout spirals
In context ↗ - therapy · Not said
My therapist says I have a strong negative self belief
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | exhaustion from youth, assumed to be unfitnessI've always felt exhausted, full stop.In context ↗ | Mild |
| — | burnout spirals, failed courses, lost jobsalways tried to push myself like I thought everyone else was doing, and failing despite this leading to regular burnout spirals, including but not limited to depression, suicidal ideationIn context ↗ | Mild |
| 2024-11-20 | using a cane, working part-time, still tired dailyI still feel tired everyday and getting out of bed is just a task everydayIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
always tried to push myself like I thought everyone else was doing, and failing despite this leading to regular burnout spirals
In context ↗ - Pain & fibromyalgia
when I experience joint or back "pain" (mostly just twinges & stiffness)
In context ↗ - Anxiety & low mood
regular burnout spirals, including but not limited to depression, suicidal ideation
In context ↗