Long COVID
Outcome unclearIll for 14 months
Long COVID with PEM and cognitive symptoms, unable to work, tried creatine and glycine
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 14 months
- Last post
- Sep 2026
In their words
- Condition: Long COVID
Each LC is different
In context ↗ - At worst: Moderate
I’ve been without income/disability for almost 5 months now. ... Simple conversations with friends or family becomes difficult to follow, and I lose a very foundational ability to focus.
In context ↗ - Began after: COVID
Each LC is different
In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
Sequoia 79490 became ill with long COVID in 2025; by nine months in, PEM had improved but cognitive symptoms left conversations hard to follow and they had stopped working. Creatine gave noticeable but not game-changing gains, and glycine greatly helped sleep, while a treatment helped function but amplified symptom swings and worsened depression. After ~10 months of net progress, symptoms nose-dived in July 2026; by September 2026 they had been unable to work 13 months.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- stimulants (Adderall, etc) · Worse
while it helps me do what I need to do, it’s basically a net negative in terms recovery and getting better. Amplifies the ebb and flow of my symptoms.
In context ↗ - Zyrtec · No change
For me, no. Each LC is different
In context ↗ - Glycine · Helped
Glycine is a game changer for sleep. At least 5 grams before bed, for me, work’s excellent.
In context ↗ - Creatine · Helped
Not a complete “game changer” (for me) so to speak but the only supplement I’ve found that has done anything noticeable.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| ~July 2025 | long COVID onsetClosing in on 9 months here.In context ↗ | Not stated |
| 2026-04-21 | PEM improved but cognitive symptoms became prominent; unable to workAlthough my PEM has improved significantly, my cognitive symptoms seem to be stepping up and taking place as my prominent symptom.In context ↗ | Moderate |
| July 2026 | symptoms took a complete nose divemy symptoms took a complete nose dive July 2026In context ↗ | Moderate |
| 2026-09-15 | still down after July nose dive; unable to work for 13 monthsmy symptoms took a complete nose dive July 2026, so this is turning into a much longer period than I ever anticipated.In context ↗ | Moderate |
Adverse events
- Amphetamine salts (Adderall)“it’s basically a net negative in terms recovery and getting better. Amplifies the ebb and flow of my symptoms.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Although my PEM has improved significantly
In context ↗ - Brain fog
Simple conversations with friends or family becomes difficult to follow, and I lose a very foundational ability to focus.
In context ↗ - Sleep problems
Glycine is a game changer for sleep.
In context ↗ - Anxiety & low mood
Terrible for depression too
In context ↗