Long COVID
Mild → no benefitIll for 7 months
Out of breath all day and severely fatigued with long COVID, no improvement
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 7 months
- Last post
- Oct 2023
In their words
- Condition: Long COVID
So after COVID I’ve been waking up with my heart racing
In context ↗ - At worst: Mild
I can’t exercise or have regular intercourse
In context ↗ - Now: No benefit
I wake up with hot flashes and gasping for air . Most of the times I can’t catch my breath
In context ↗ - Began after: COVID
I had sleep apnea before I got COVID in March 2023
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
A 30-year-old woman was left out of breath all day, with a racing heart on waking and severe fatigue, after COVID twice in March 2023. She was diagnosed with POTS without testing; sugar-free electrolytes helped a little, acupuncture briefly helped before she felt awful again, and she avoided medications over side effects. By October 2023 she was still waking gasping for air and had started Dulera for asthma.
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What they tried
Also tried
Their words about each treatment
- electrolytes without sugar · Helped
I started doing electrolytes without sugar and it helps a little
In context ↗ - acupuncture · Helped
I tried it and it helped a little but then I felt awful again
In context ↗ - hydroxyzine · Helped
Antihestimine as of hydroxyzine? I drank one last night for the first time . Best sleep in a while . 10 mg but felt dizzy .
In context ↗ - dulera · No change
And I was given dulera for maintenance about a week ago . But still having these episodes.
In context ↗ - weight loss · Not said
I’m working on losing weight , I’ve lost 18 in two months .
In context ↗ - COVID vaccination as treatment · Not said
I got really bad palpitations and couldn’t get the second one
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2023 | caught COVID twice in a row, out of breath afterwardsI had sleep apnea before I got COVID in March 2023In context ↗ | Mild |
| 2023-08-31 | waking with racing heart, out of breath all day, severe fatigueSo after COVID I’ve been waking up with my heart racing and usually my oxygen is a little low or it’s hard to breathe.In context ↗ | Mild |
| 2023-10-02 | waking gasping for air and hot flashes after a two-week respiratory infection; started DuleraI wake up with hot flashes and gasping for airIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I got really bad palpitations and couldn’t get the second one” In context ↗ Heart rhythm problems
- Hydroxyzine (Atarax, Vistaril)“I drank one last night for the first time . Best sleep in a while . 10 mg but felt dizzy .” In context ↗ Side effects
- Acupuncture“I tried it and it helped a little but then I felt awful again .” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
So after COVID I’ve been waking up with my heart racing
In context ↗ - Breathlessness
during the day I’m always out of breath
In context ↗ - POTS & dysautonomia
I was diagnosed with pots with no actual testing
In context ↗ - Temperature regulation
I wake up with hot flashes and gasping for air
In context ↗