ME/CFS PEM burnout, whole-body pain and shaking, no improvement after quitting exercise
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 6 years
- Last post
- May 2021
In their words
- Condition: ME/CFS
Been suffering from cfs for about 6 years
In context ↗ - Now: No benefit
I kept trying to rush my recovery and get back to exercise but every time it screws me up. ... maybe I'll get better and maybe not
Summary
Orchid 91676 had had CFS for about six years when, in May 2021, they described a bad PEM burnout with whole-body pain and shaking after repeatedly trying to rush recovery and return to exercise. They quit exercise indefinitely and planned to isolate and avoid physical, mental and social exertion. They planned to play the hand they were dealt, unsure whether they would improve.
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What they tried
Also tried
Their words about each treatment
- exercise · Worse
I kept trying to rush my recovery and get back to exercise but every time it screws me up.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 2015 | CFS onsetBeen suffering from cfs for about 6 yearsIn context ↗ | Not stated |
| 2021-05-23 | PEM burnout after trying to exerciseIn a pem burnout! ... Whole body hurts so bad and I'm shakingIn context ↗ | Moderate |
| 2021-05-24 | still avoiding exertion and peopleGonna play the hand I'm dealt and maybe I'll get better and maybe notIn context ↗ | Moderate |
Adverse events
- Everyday exercise and activity“I kept trying to rush my recovery and get back to exercise but every time it screws me up.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I kept trying to rush my recovery and get back to exercise but every time it screws me up.
In context ↗ - Pain & fibromyalgia
Whole body hurts so bad
In context ↗ - Anxiety & low mood
because of social anxiety
In context ↗