ME/CFS
Severe → relapsed
Slept over 20 hours a day with ME/CFS, improved then relapsed to practically bedbound
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
I got slapped with the old symptoms, crazy fatigue, brain fog, irritablity, pretty constant eye lid twitches
In context ↗ - At worst: Severe
for around 2 months I would sleep >20 hours a day ... I'm practically bed bound at this point.
In context ↗ - Now: Relapsed
Ive been functioning at around 80% of my pre illness state since then ... Then a week ago, I got slapped with the old symptoms
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Almost three years before their June 2024 post, they were hospitalised with a suspected viral infection and slept over 20 hours a day for about two months. Six months of slow recovery left them at roughly 80% of pre-illness function, with occasional days wiped out. A week before posting the old symptoms returned — fatigue, brain fog, irritability, eyelid twitches — leaving them practically bed bound, with no trigger known.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| after a few days in hospital | post-viral fatigue, slept more than 20 hours a dayfor around 2 months I would sleep >20 hours a dayIn context ↗ | Severe |
| six months of slow recovery | very slow uphill battle back to some sort of normalitythen for 6 months after that it was a very slow uphill battle to get back to some sort of normalityIn context ↗ | Mild |
| since then | functioning at about 80% of pre-illnessIve been functioning at around 80% of my pre illness state since then.In context ↗ | Mild |
| 2024-06-22 | flare of old symptoms; practically bed boundThen a week ago, I got slapped with the old symptoms, crazy fatigue, brain fog, irritablity ... I'm practically bed bound at this point.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Brain fog
crazy fatigue, brain fog, irritablity
In context ↗ - Sleep problems
for around 2 months I would sleep >20 hours a day
In context ↗