Long COVID with bad MCAS and POTS, now close to normal after salt sticks and electrolytes
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2.5 years
- Last post
- Jul 2022
In their words
- Condition: Long COVID
I got hit with OG prior to vaccine availability, got MCAS/POTS ferociously bad when NO one knew wtf was going on
In context ↗ - Now: Near normal
now back to living a normal life. Like 90% better. ... I still have some hair loss ... But I am feeling fine and enjoying life.
In context ↗ - Began after: COVID
I developed POTS after OG covid in March 2020.
In context ↗
Read from 8 of their posts and comments; links to the 5 this page draws on
Summary
Falcon 61289 developed long COVID in March 2020, with MCAS and POTS ferociously bad, low electrolytes and brain fog, and was in and out of the ER. Salt Sticks and electrolyte replacement, extra potassium from orange juice and magnesium got them back to normal. By July 2022 they rated themselves about 90% better, working in education, marketing and publishing and feeling normal most days, though still troubled by hair loss.
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What they tried
What they credit
Also tried
Their words about each treatment
- potassium, magnesium, calcium · Helped
my electrolytes get low if I don't supplement (salt, potassium, calcium, magnesium)
In context ↗ - vitamins · Not said
I just keep up on electrolytes and fluids (and vitamins)
In context ↗ - avoid high humidity · Not said
I take electrolyte pills and avoid high humidity.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.3 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | long COVID after original COVID infectionI developed POTS after OG covid in March 2020.In context ↗ | Not stated |
| 2020 | MCAS and POTS ferociously bad, in and out of the ERI was in and out of the ER until I changed my primary doctor to someone who recognized what was happening to meIn context ↗ | Not stated |
| 2022-07-01 | back to a normal life, about 90% betternow back to living a normal life. Like 90% betterIn context ↗ | Near normal |
| 2022-07-19 | feels totally normal most days while keeping up electrolytes and fluidsI don't take meds, I just keep up on electrolytes and fluids (and vitamins) and I'm a-okay, feel totally normal most daysIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I developed POTS after OG covid in March 2020.
In context ↗ - Mast cell (MCAS) & allergies
got MCAS/POTS ferociously bad when NO one knew wtf was going on
In context ↗ - Brain fog
The brain fog and word recall was pretty bad for a while, but it went away.
In context ↗ - Hair loss
I still have some hair loss
In context ↗
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