ME/CFS
Severe → no benefit
Severe ME/CFS, 95% bedridden with constant pain, no improvement from fasting or a GLP-1
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I have severe ME, severe POTS and severe fibromyalgia.
In context ↗ - At worst: Severe
I’m severe and 95% bedridden
In context ↗ - Now: No benefit
Now I’m severe and have this pain constantly in my entire body
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Had mild ME/CFS, then pushed themselves to hike and live normally to avoid arguments and became severe. By 2026 they described severe ME, severe POTS and severe fibromyalgia, and said they were 95% bedridden with constant whole-body pain and cold hands and feet. They fasted at least 16 hours and took a GLP-1 drug, and had many pillows for bed support. No improvement was reported.
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What they tried
Also tried
painkillers· Helped · wore offanxiety- and lifesorrow-meds· Helpedpushed myself to hike and live normally· Much worseglp-1· Not saidfasting for at least 16 hours· Not saidmagnesium glycinate· Not saidsalt· Not said
Their words about each treatment
- pushed myself to hike and live normally · Much worse
pushed myself to hike and live normally while on mild ME not to cause any arguments, I’m now on severe ME
In context ↗ - glp-1 · Not said
I’m already fasting for at least 16 hours and on glp-1. im not on a high enough dose to stop the food noise yet tho
In context ↗ - fasting for at least 16 hours · Not said
I’m already fasting for at least 16 hours
In context ↗ - painkillers · Helped
my painkillers have decided to not work either
In context ↗ - magnesium glycinate · Not said
magnesium glycinate oil or supplement and enough salt
In context ↗ - anxiety- and lifesorrow-meds · Helped
when my pain-, anxiety- and lifesorrow-meds work, and the stars allign, it’s not that bad
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | mild ME/CFSThis is how it started for me when I was mild.In context ↗ | Mild |
| — | pushed through and hiked while mild, became severepushed myself to hike and live normally while on mild ME not to cause any arguments, I’m now on severe MEIn context ↗ | Severe |
| 2026-10-04 | still severe, constant whole-body painNow I’m severe and have this pain constantly in my entire body, like I’m moving in quicksand.In context ↗ | Severe |
Symptoms mentioned
Anxiety & low moodPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I’m in PEM myself
In context ↗ - POTS & dysautonomia
I have severe ME, severe POTS and severe fibromyalgia.
In context ↗ - Anxiety & low mood
when my pain-, anxiety- and lifesorrow-meds work
In context ↗ - Temperature regulation
Icecold feet and hands as well.
In context ↗