ME/CFS
Moderate → no benefit
In bed 12 to 14 hours a day with ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2025
In their words
- Condition: ME/CFS
pushing myself = longer crash
In context ↗ - At worst: Moderate
I can do a couple dishes if I push myself, but will just start eating things straight out of takeout containers. ... Showering is okay with my shower chair
In context ↗ - Now: No benefit
I can communicate but it’s way more difficult than normal.
In context ↗
Summary
A user on long-COVID and ME/CFS forums described spending 12 to 14 hours in bed on a delayed schedule, with at least 10 hours of sleep ideally, blackout cling on the windows, and lights that dim and brighten automatically. They used something mainly for nausea, and occasionally for sleep and panic attacks. They could watch only familiar shows, wash a couple of dishes if they pushed, and shower briefly on a chair; pushing meant a longer crash.
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What they tried
Also tried
delayed sleep schedule· Helpedweed· Helpedshower chair· Helpedpacing· Helpedblackout blinds and automatic lights· Not saidzofran· Not said
Their words about each treatment
- blackout blinds and automatic lights · Not said
I have blackout cling on my bedroom windows & automatic lights set to slowly dim when it’s time to go to sleep, and slowly light up when it’s time to get up.
In context ↗ - delayed sleep schedule · Helped
My body was a lot happier with me when I embraced the delayed sleep schedule & accepted that I’m a night owl.
In context ↗ - weed · Helped
I use it mainly for nausea, especially when I feel so bad that I can’t make myself swallow a zofran. I’ll also occasionally use it for sleep, and calming down from panic attacks.
In context ↗ - zofran · Not said
especially when I feel so bad that I can’t make myself swallow a zofran
In context ↗ - shower chair · Helped
Showering is okay with my shower chair, I just keep it short
In context ↗ - pacing · Helped
Any housework I’d also have to push myself for, and pushing myself = longer crash so I don’t unless it’s absolutely necessary.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I do 12-14 hours in bed, at least 10 hours of sleep ideally. I also have a delayed sleep schedule
In context ↗ - Gut problems
I use it mainly for nausea
In context ↗ - Anxiety & low mood
calming down from panic attacks
In context ↗ - Post-exertional malaise
pushing myself = longer crash so I don’t unless it’s absolutely necessary
In context ↗ - Brain fog
I can communicate but it’s way more difficult than normal.
In context ↗