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ME/CFS Outcome unclearIll for 4.5 years

ME/CFS for three years; creatine let them walk further but PEM and brain fog unchanged

Condition
ME/CFS
At worst
Not stated
Ill for
4.5 years
Last post
Mar 2026
In their words
  • Condition: ME/CFSMethylene Blue is the only other thing I take for CFS. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Lynx 93455 had ME/CFS for about three years before trying creatine, which they took on its own at 5 or 6 and stopped about a year and a half before writing. It let them walk further, but post-exertional malaise stayed the same and it did not really help brain fog. They still take vitamin B12 and methylene blue for CFS.

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What they tried

Their words about each treatment
  • Creatine · HelpedWalk yes; lift, haven't try. ... How many years sick before trying it? 3(?) In context ↗
  • Methylene Blue · Not saidMethylene Blue is the only other thing I take for CFS In context ↗
  • Vitamin B12 · Not saidI also get my Vitamin B12 from LIV as well In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
onsetME/CFS onset
about three years into illnesscreatine increased how far they could walkWalk yes; lift, haven't try. In context ↗Creatine
2026-03-04still ill; creatine stopped about a year and a half earlier, taking vitamin B and methylene blueOther than vitamin B, Methylene Blue is the only other thing I take for CFS. In context ↗

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