ME/CFS
Moderate → somewhat better
Bedbound for a week with ME/CFS, now somewhat better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
I’ve been off work for two months now, after a crash left me bed bound for a week
In context ↗ - At worst: Moderate
I’ve managed to get to a moderate level where I have a few functional hours a week
In context ↗ - Now: Somewhat better
after a crash left me bed bound for a week I’ve managed to get to a moderate level where I have a few functional hours a week
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After a crash left them bed bound for a week, they had been off work for two months and reached a moderate level with only a few functional hours a week. They barely left the house and were pacing ahead of their mother's birthday party, worried about crashing again. An hour sitting in a salon for a manicure already left them fluey and achy.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- pacing · Not said
I’ve been pacing in preparation but I’m worried about pushing myself into another crash
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | crash left them bed bound for a weekafter a crash left me bed bound for a weekIn context ↗ |
| 2025-04-16 | off work two months, a few functional hours a week, pacing before mum's partyI’ve been off work for two months now ... I have a few functional hours a weekIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’m worried about pushing myself into another crash
In context ↗ - Flu-like symptoms
i already feel fluey and achy
In context ↗