Long COVID
Moderate → somewhat betterIll 3 years before improving or writingNeeds ongoing treatment
Long COVID with dysautonomia and severe brain fog, somewhat better after stopping an SNRI
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Dec 2024
In their words
- Condition: Long COVID
it blew up my long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM)
In context ↗ - At worst: Moderate
I was already several months off of work and most activities by then
In context ↗ - Now: Somewhat better
Still not back, but it's happening soon, though rehabilitating to doing heavy housework is harder.
In context ↗ - Began after: COVID
my long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM)
In context ↗
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
A Reddit user described long COVID from late 2021, with dysautonomia, fatigue, PEM and severe brain fog; they kept working for about 18 months of decline before stopping. A year on an SNRI blew up their cardiovascular symptoms, fatigue and PEM and left them very disabled. Coming off it helped some symptoms, brain fog began lifting around 27 months in, and by late 2024 they still had disabling dysautonomia but expected to return to work soon.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- SNRI · Much worse
I took an SNRI for a year and it blew up my long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM) and had me very, very disabled.
In context ↗ - valtrex · Helped
It works as long as I don't miss a dose.
In context ↗ - rest · Not said
The more I rest, the more deconditioned I get, which means I have to rest even more.
In context ↗ - improving diet · Not said
I had spent so long improving diet, making lifestyle changes, trying supplements, etc. that I can't tell you if one thing did it
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| ~December 2021 | long COVID onset with dysautonomia, fatigue and PEM; kept workingmy long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM)In context ↗ | Mild |
| 2022–2023 | a year on an SNRI blew up cardiovascular symptoms, fatigue and PEMit blew up my long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM) and had me very, very disabledIn context ↗ | Severe |
| about 1.5 years in | stopped working after 1.5 years of decline; at worst could not process a video or follow a conversationI didn't lose the ability to work until after about 1.5 years of decline.In context ↗ | Moderate |
| November 2023 | came off the SNRI, some symptoms improvedI did successfully come off it a week and a half ago, seeing improvement in some symptoms, but not in others.In context ↗ | Moderate |
| 27 months in (~March 2024) | brain fog started improving, other symptoms did notMy brain fog started improving after 27 months.In context ↗ | Moderate |
| December 2024 | still not back at work but expects to return soon; still disabled by dysautonomiaStill not back, but it's happening soon, though rehabilitating to doing heavy housework is harder.In context ↗ | Moderate |
Adverse events
- Antidepressants (unspecified)“it blew up my long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM) and had me very, very disabled.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
Memory/word recall issues. Reading was a big struggle. Couldn't handle conversations with more than one person.
In context ↗ - Post-exertional malaise
it blew up my long COVID symptoms (especially cardiovascular/dysautonomic, fatigue, and PEM)
In context ↗ - POTS & dysautonomia
I am still very disabled by dysautonomia
In context ↗