ME/CFS
Mild → no benefitNeeds ongoing treatment
ME/CFS with leg pain and long naps, in bed for days after pushing; Ritalin no benefit
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2022
In their words
- Condition: ME/CFS
I'm diagnosed with both CFS and Fibro.
In context ↗ - At worst: Mild
I use a rollator at work so I can have something to have to push myself.
In context ↗ - Now: No benefit
In 2020 it's gotten way worse, that I used to be a professional dancer.
In context ↗
Summary
Diagnosed with fibromyalgia at 14 and CFS at 23, Dusk 75833 attributes both to genetics. Ritalin helped stop slipping into 16- to 20-hour daytime naps, but in 2020 the illness worsened sharply and the former professional dancer feared never dancing again because of leg pain. By October 2022 the CFS felt managed with the stimulant while knee and hip pain continued; pushing through left them in bed for days or weeks.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- Ritalin · Helped
Was given Ritalin to help. Which it did.
In context ↗ - pain meds · Not said
If I don't take it, pain meds, and other management it hits like a freight train.
In context ↗ - pushing harder · Much worse
When I push I'm in bed for days sometimes weeks.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| age 14 | fibromyalgia diagnosisAt 14 I was given Fibromyalgia diagnosis.In context ↗ | |
| age 23 | CFS diagnosis and stimulant given, which helpedWas given Ritalin to help. Which it did. ... I was given the diagnosis at 23.In context ↗ | Methylphenidate (Ritalin, Concerta) |
| 2020 | condition worsened sharply; could no longer danceIn 2020 it's gotten way worse, that I used to be a professional dancer.In context ↗ | |
| 2022-10-14 | CFS managed with stimulant; works using a rollator; ongoing painmy CFS feels managed with the stim. If I don't take it, pain meds, and other management it hits like a freight train.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
When I push I'm in bed for days sometimes weeks.
In context ↗ - Sleep problems
I could be slipping to 16 to 20 hour naps.
In context ↗ - Pain & fibromyalgia
The triggers are in my knees and left hip area.
In context ↗ - Flu-like symptoms
I lay moaning feeling like I have a flu. When I don't.
In context ↗