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ME/CFS Moderate → no benefit

ME/CFS with chronic muscle aches and sleep problems, no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
May 2025
In their words
  • At worst: ModerateMost days I have to take a nap, my night time sleep quality is just terrible In context ↗
  • Now: No benefitI HAVE to take a nap and I wake up feeling terrible. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

The user reported ongoing sleep problems, waking feeling terrible and needing a nap most days, along with chronic muscle aches. Coffee got them going for about eight hours, but naps left them feeling completely trashed. Periodic limb movement was documented on four sleep studies, and the symptoms were ongoing at the time of writing.

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What they tried

Their words about each treatment
  • coffee · Helpedcoffee gets me going for about 8 hours, still with chronic muscle aches In context ↗
  • naps · WorseWhen I nap, usually an hour, I feel just like I did in the morning. Just completely trashed. In context ↗

Symptoms mentioned

Their words about their symptoms

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Asking aboutSandpiper 22077’s story

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