ME/CFS
Outcome unclear
ME/CFS with insomnia far worse than usual for over a year; low-dose naltrexone unclear
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2024
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
A person with ME/CFS had insomnia far worse than usual for over a year, and found eating physically hard, so drank protein shakes for nutrition. They took low-dose naltrexone, rising to 2 mg nightly under a specialist; at the higher dose it caused terrible insomnia for the first week, which they felt compounded their fatigue. Stopping it for about a week did not clearly help, and they could not yet tell whether it worked.
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What they tried
Their words about each treatment
- LDN (low dose naltrexone) · Worse
it did cause terrible insomnia for the first week when taking this new tablet at higher dose vs when I was mixing a lower dose in water so I think that has compounded my fatigue
In context ↗ - protein shakes · Not said
what I’ve been doing is drinking protein shakes because drinking my nutrients is easier for me ... I feel better knowing I’m getting something healthy into my body
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | ME/CFS with long-standing insomnia |
| 2024-07-06 | still ill; sleep still poor off naltrexoneI already have horrible sleep so I stopped it for about a weekIn context ↗ |
| 2024-10-03 | eating physically hard; protein shakes for nutritionit’s physically hard for me to eat even though I want toIn context ↗ |
Adverse events
- Low-dose naltrexone“it did cause terrible insomnia for the first week when taking this new tablet at higher dose” In context ↗ Insomnia from treatment
- Low-dose naltrexone“yes “angrier” is kind of how I feel, like irritated easier” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I already have horrible sleep so I stopped it for about a week
In context ↗