Long COVID with PEM and brain fog, improved after Moderna booster then relapsed
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 6 months
- Last post
- Nov 2024
In their words
- Condition: Long COVID
I’m still Long hauling but I think it helped.
In context ↗ - At worst: Mild
First time I’ve run in about 5 months, figured I take it easy. I normally run 4 miles in about 30 mins, it took 38 mins today.
In context ↗ - Now: Relapsed
I flared and it’s seems permanent now although I’ve recovered to 90% before without doing anything but waiting.
In context ↗ - Began after: COVID
before I got long Covid
Read from 40 of their posts and comments; links to the 21 this page draws on
Summary
A Reddit user who developed long COVID in early 2022 had PEM, brain fog, headaches, gut pain and throat tightness, using famotidine and antihistamines as needed. They credited the autumn 2022 Moderna booster, taken alongside a flu vaccine, with easing flares and letting them exercise again, though not back to 100%. Colds in late 2022 and early 2023 caused relapses, with getting sick usually dropping them to about 40%, and flares continued through 2023; coffee intolerance persisted into late 2024.
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What they tried
Also tried
Their words about each treatment
- famotidine (Pepcid) · Helped
My doc prescribed famotidine, it helps a bit but I’ll still get the feeling sometimes I’m about to choke
In context ↗ - loratadine (Claritin D) · No change
Does taking them make the symptoms go away I find they do nothing ?
In context ↗ - meal replacements (Plenny, Huel, Soylent) · Not said
I take meal replacements. My personal favorite is plenny but there’s a ton of brands: huel, Soylent, schmilk and etc.
In context ↗ - updated vaccine (4 Pfizer, then Moderna bivalent) · Helped
I definitely think the vaccine helped although I’m not back to 100% yet.
In context ↗ - flu vaccine · Not said
I got both the flu shot and new bivalent booster at the same time. Felt sick for 2-3 days but I’m ok now.
In context ↗ - Adderall · Not said
I tried adderall I don’t like it so I just stick with coffee.
In context ↗ - hydration · Helped
Are you hydrating that usually fixes it for me
In context ↗ - B12 · No change
Yeah I started to I didn’t notice a difference interesting though
In context ↗ - probiotics · Helped
Yeah I have it when I flare really bad nothing helped besides probiotics ironically so now that’s all I take
In context ↗
Approaches: Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2022 | long COVID onsetI just reached 6 monthsIn context ↗ | Mild | |
| 2022-08-30 | throat tightness, daily famotidine, still long haulingI never recovered from this I just suffer through it.In context ↗ | Mild | |
| 2022-09-19 | first run in five months without crashingFirst time I’ve run in about 5 months, figured I take it easy.In context ↗ | Mild | |
| 2022-10-10 | vaccine eased flares; exercising again, medicine only as neededI definitely think the vaccine helped although I’m not back to 100% yet.In context ↗ | Mild | COVID vaccination as treatment |
| 2022-10-31 | relapse after a coldYeah I just had the cold as well seems to have made me relapse.In context ↗ | Mild | |
| 2023-02-22 | month-long cold knocked them back to 40%I got a cold that’s lasted a month already, getting sick usually kicks me back down to 40%In context ↗ | Moderate | |
| 2023-06-07 | able to do normal things within reasonim basically able to do normal stuff within reasonIn context ↗ | Mild | |
| 2023-08-11 | flare with new heat intoleranceJust flared recently after doing pretty good for awhile and now I have a heat intolerance for some reason.In context ↗ | Mild | |
| 2024-11-14 | drinking alcohol again; coffee still a problemYes I can drink alcohol now but coffee is still a problemIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I got both the flu shot and new bivalent booster at the same time. Felt sick for 2-3 days but I’m ok now.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the only symptoms I have now besides flare episodes causing pem
In context ↗ - Brain fog
Mine used to be episodic but I had a bad flare now it’s permanent
In context ↗ - Headaches & migraine
I have headaches that appear randomly or if I eat or drink something
In context ↗ - Gut problems
I’m getting lots of stomach pains and headaches
In context ↗ - POTS & dysautonomia
I just have stomach pain and low bp now
In context ↗ - Heart symptoms & palpitations
random pains occasionally that happen on either side of my chest
In context ↗ - Sleep problems
I can exercise but that makes me have insomnia for some reason
In context ↗ - Flu-like symptoms
sore throat, derealization
In context ↗ - Temperature regulation
now I have a heat intolerance for some reason
In context ↗ - Mast cell (MCAS) & allergies
I’m still allergic to coffee, alcohol and certain foods
In context ↗
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