ME/CFS
Moderate → somewhat betterIll 3 years before improving or writing
ME/CFS too tired to stay awake in class, now somewhat better but unable to work
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Jun 2025
In their words
- Condition: ME/CFS
I have had CFS for over 20 years
In context ↗ - At worst: Moderate
I was so tired that I literally fell asleep in class more than once ... After a few weeks, I went to see the Dean and told him what was happening to me and that I had to leave school.
In context ↗ - Now: Somewhat better
they gradually got somewhat better and plateaued where I am now functioning at around 30-40% of what I was. I haven't been able to work in years but I am able to engage with my family and kids and help out a little.
In context ↗ - Began after: another virus
I believe it was the result of having the flu (the real flu, like 4 or 5 weeks).
Read from 20 of their posts and comments; links to the 11 this page draws on
Summary
A lawyer who fell ill in law school around 2000, he was too tired to stay awake in class and left his studies. The first two to three years were brutal; after about three years he improved somewhat and plateaued. Over 20 years on he functions at around 30-40% of his former level and cannot work, but helps with his family and manages symptoms with naps and cannabis. He tried every supplement, treatment and doctor without real success.
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What they tried
Also tried
Cannabis· HelpedWellbutrin· Helpednaps· Helpedgetting in tune with my body and managing my symptoms· Helpedsupplements· No changediet (eating less)· No changeintermittent fasting· Not said
Their words about each treatment
- supplements · No change
I tried every supplement, treatment, doctor possible but nothing really worked.
In context ↗ - diet (eating less) · No change
Did it improve my CFS? No.
In context ↗ - intermittent fasting · Not said
I am not sure if it helps relieve any symptoms or give extra clarity but I am able to maintain weight without the need for exercise
In context ↗ - Cannabis · Helped
Cannabis has been a gamechanger with the aches and pain for sleeping.
In context ↗ - Wellbutrin · Helped
Wellbutrin helped me a lot as well.
In context ↗ - naps · Helped
If I can't get at least a 2 hour nap, I don't even bother because with any less, I get zero benefit.
In context ↗ - getting in tune with my body and managing my symptoms · Helped
It's not just pacing. You will figure out how your body reacts to pretty much every situation.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| law school, late 1990s | fell ill in law school, fell asleep in class and had to leave schoolI was stricken with this affliction back when I was in law schoolIn context ↗ | Moderate |
| first 2-3 years | brutal, unrelenting symptoms at their worstMy first 2-3 years were brutal. Not only was I probably at my worst symptom wiseIn context ↗ | Moderate |
| about 3 years in | improved somewhat then plateauedAfter about 3 years, I improved somewhat but plateaued.In context ↗ | Moderate |
| a few times per year, ongoing | severe episodes lasting up to two weeksa few times per year I get severe episodes that last 2 weeks maximumIn context ↗ | Severe |
| 2024-02-28 | stable at a plateau, unable to work for yearsplateaued where I am now functioning at around 30-40% of what I wasIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still get really tired if I overdo it
In context ↗ - Sleep problems
I take 2 hour naps regularly. Longer sometimes.
In context ↗ - Pain & fibromyalgia
Some nights I am so sore all over that I can't sleep.
In context ↗