Unable to move or read with ME/CFS, improved then relapsed after stress
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2017
In their words
- Condition: ME/CFS
I was recovered for a while... years even, and then began to crash again and more frequently than before.
In context ↗ - At worst: Moderate
I can't move today. I can't even read stories. It took me 3hrs to print shipping labels for a box.
In context ↗ - Now: Relapsed
I was recovered for a while... years even, and then began to crash again and more frequently than before.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Crane 47422 recovered for years, then crashed again more often. Hormonal birth control worsened lethargy and brought crashes almost three times a month; Adderall left them unable to get off the couch once it wore off, while 5-HTP, L-methylfolate and methylcobalamin eased mood and brain fog. In July 2017, after doing much better, stress, a houseguest and pushing through exhaustion left them unable to move or read.
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What they tried
What they credit
Also tried
Their words about each treatment
- hormonal birthcontrol · Worse
hormonal birthcontrol ... lethargy was increased, depression was amplified, and I was crashing almost 3x a month
In context ↗ - adderall · Worse
adderall seemed to work during the day but as soon as it wore off I was done for the day and barely able to peel myself off the couch.
In context ↗ - 5htp · Helped
I've noticed general mood improvement as well as decreased brain fog and more regular sleep patterns. Not perfect, but... better
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset, date not givenI was recovered for a while... years even, and then began to crash againIn context ↗ | Not stated |
| 2016-11-04 | began crashing again after years of recoveryI was recovered for a while... years even, and then began to crash again and more frequently than beforeIn context ↗ | Mild |
| 2016-12-02 | supplements eased mood, brain fog and sleep while crashing often on birth controlI've noticed general mood improvement as well as decreased brain fog and more regular sleep patterns. Not perfect, but... betterIn context ↗ | Mild |
| 2017-07-17 | doing much better before a crashI've been doing better, much better in factIn context ↗ | Mild |
| 2017-07-17 | crashed after stress, a difficult houseguest and a party with red wineI can't move today. I can't even read stories. It took me 3hrs to print shipping labels for a box.In context ↗ | Severe |
| 2017-07-18 | still crashed, slept all day and felt a tad betterI slept all day today and feel a tad better, I'm just tired of getting so tiredIn context ↗ | Moderate |
Adverse events
- Hormonal birth control (unspecified)“hormonal birthcontrol ... lethargy was increased, depression was amplified, and I was crashing almost 3x a month” In context ↗ Made symptoms worse
- Amphetamine salts (Adderall)“adderall seemed to work during the day but as soon as it wore off I was done for the day and barely able to peel myself off the couch” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I could feel the exhaustion setting in on friday, but I pushed out of obligation.
In context ↗ - Brain fog
I can't focus on why I even started writing this.
In context ↗ - Sleep problems
I slept all day today and feel a tad better
In context ↗ - Anxiety & low mood
depression was amplified
In context ↗
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