ME/CFS
Outcome unclear
ME/CFS and POTS with PEM and weakness, still using a wheelchair; Midodrine helped POTS
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
I have POTS, ME/CFS, and Long COVID.
In context ↗ - At worst: Severe
A manual chair was too much for me due to lack of strength and PEM, but a power chair has been a game changer.
In context ↗ - Began after: COVID
I have POTS, ME/CFS, and Long COVID.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Pebble 41337 has POTS, ME/CFS and Long COVID, with PEM and loss of strength that made a manual wheelchair too much. They said Midodrine helped their POTS most and Mestinon helped less, and later described a power chair as a game changer for independence. They still used a wheelchair to conserve energy in their latest post.
Ask Miruvor AI
What they tried
Their words about each treatment
- Midodrine · Helped
I’ve focused on treating my POTS symptoms and Midodrine has been most helpful.
In context ↗ - Mestinon · Helped
Mestinon has also helped, just not as significantly.
In context ↗ - power chair · Helped
A manual chair was too much for me due to lack of strength and PEM, but a power chair has been a game changer.
In context ↗ - manual chair · Worse
A manual chair was too much for me due to lack of strength and PEM
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | POTS, ME/CFS and Long COVID with PEM and weaknessI have POTS, ME/CFS, and Long COVID.In context ↗ | |
| 2025-07-21 | POTS symptoms helped by Midodrine, with Mestinon helping lessMidodrine has been most helpful. Mestinon has also helped, just not as significantly.In context ↗ | Midodrine |
| 2025-09-04 | got a power chair, gaining independenceI love the independence I have with my power chair.In context ↗ | |
| 2026-04-30 | still uses wheelchair to conserve energy on outingsGoing out in a wheelchair saves so many spoons for me.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
lack of strength and PEM
In context ↗ - Muscle weakness
lack of strength
In context ↗