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ME/CFS Outcome unclear

Gut problems for years with ME/CFS and SIBO; low-carb, low-fibre meals worked best

Condition
ME/CFS
At worst
Not stated
Ill for
many years
Last post
Apr 2022
In their words
  • Condition: ME/CFSI have had similar symptoms as you for many years. I also have SIBO and SBO In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Posted in r/cfs that they had had gut problems for many years, along with SIBO and SBO; a low-carb, low-fibre diet with small meals worked best, while enzymes and pro-motility and anti-bloating supplements gave no results. They also posted in 2022 that they had felt much better living in Fontana than in an old Venice house and did better in sealed, less dusty homes, but windy dusty days made them feel terrible. No overall change in the illness was reported.

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What they tried

Their words about each treatment
  • enzymes · No changeI've tried enzymes and a bunch of pro-motility and anti-bloating supplements with no results. In context ↗
  • low carb, low fiber diet with small meals · HelpedWhat's worked best for me is a low carb, low fiber diet with small meals. In context ↗
  • living in Fontana · HelpedFelt much better living in Fontana despite being near the dump and worse air pollution. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—long-standing ME/CFS symptoms with gut problems, SIBO and SBOI have had similar symptoms as you for many years. I also have SIBO and SBO In context ↗
—lived in Fontana instead of the old Venice house and felt much betterFelt much better living in Fontana despite being near the dump and worse air pollution. In context ↗
—felt terrible again on windy, dusty daysThough on windy days with lots of dust I’d feel terrible again. In context ↗
2022-04-30doing better in sealed, less dusty homes but troubled by CO2 build-upI think I just do better with sealed homes with less dust but then the problem is CO2 build up. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Gut problemsI have had similar symptoms as you for many years. I also have SIBO and SBO In context ↗

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Asking aboutSequoia 91435’s story

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