Long COVID
Outcome unclear
Long COVID with POTS, sleep and temperature issues; benfotiamine and fludrocortisone tried
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: Long COVID
r/covidlonghaulers
In context ↗
Read from 8 of their posts and comments; links to the 8 this page draws on
Summary
A person with long COVID reported POTS, sleep problems, temperature dysregulation and mast-cell symptoms. Cymbalta made their POTS worse and left them with anhedonia; propranolol also went badly. A 5 mg twice-daily dose was limited by poor sleep. Benfotiamine helped some symptoms but worsened sleep, and something they took was good for mast-cell symptoms but completely broke their sleep, so they stopped it, while fludrocortisone restored normal temperature.
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What they tried
Also tried
Their words about each treatment
- Cymbalta · Worse
My pots was worse with cymbalta
In context ↗ - Cold shower · No change
A don't feel any stimulation or boost, nothing like people get.
In context ↗ - Ivabradine · Not said
I take 5 mg twice a day and have a problem with sleep
In context ↗ - Mestinon · Worse
I was at 60 mg 3 times and it was pretty hard, a lot of sweating, saliva, stomach pain
In context ↗ - fludrocortisone · Helped
I tried fludrocortisone and my temperature is normal now.
In context ↗ - Propranolol · Worse
Propranolol is bad
In context ↗ - benfotiamine · Helped
I took benfotiamine also for some time, yes, it helps, but in fact it works by stimulation and in perspective it worse my sleep
In context ↗ - vitamin c · Helped
I was taking it, it was good for mcas, but it completely broke my sleep, so unfortunately i stopped taking it
In context ↗
Adverse events
- Duloxetine (Cymbalta)“I got anhedonia from cymbalta, so not, it works identical” In context ↗ Mood or psychiatric effects
- Duloxetine (Cymbalta)“My pots was worse with cymbalta” In context ↗ Made symptoms worse
- Ivabradine“I take 5 mg twice a day and have a problem with sleep” In context ↗ Insomnia from treatment
- Mestinon / pyridostigmine“I was at 60 mg 3 times and it was pretty hard, a lot of sweating, saliva, stomach pain” In context ↗ Side effects
- Thiamine / benfotiamine“it works by stimulation and in perspective it worse my sleep” In context ↗ Insomnia from treatment
- Vitamin C“it was good for mcas, but it completely broke my sleep, so unfortunately i stopped taking it” In context ↗ Insomnia from treatment
Symptoms mentioned
Anxiety & low moodMast cell (MCAS) & allergiesPOTS & dysautonomiaSleep problemsTemperature regulation
Their words about their symptoms
- POTS & dysautonomia
My pots was worse with cymbalta
In context ↗ - Sleep problems
I take 5 mg twice a day and have a problem with sleep
In context ↗ - Mast cell (MCAS) & allergies
it was good for mcas
In context ↗ - Temperature regulation
I tried fludrocortisone and my temperature is normal now
In context ↗ - Anxiety & low mood
I got anhedonia from cymbalta
In context ↗