ME/CFS
Severe → no benefitIll for 3 years
Bedbound three years by pelvic pain with ME/CFS, no improvement after physiotherapy
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 3 years
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
I was just diagnosed with CFS/ME last month
In context ↗ - At worst: Severe
I've been bedbound for 3 years now already ... I was moderate and now I'm moderate-severe.
In context ↗ - Now: No benefit
my baseline has gotten much worse from all of the visits
In context ↗ - Began after: nothing they could name
I was just diagnosed with CFS/ME last month after thinking for years it was just a part of Fibromyalgia.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Zephyr 83034 was diagnosed with CFS/ME in March 2025, after years of thinking it was just part of fibromyalgia, and had been bedbound for three years by severe pelvic pain (suspected endometriosis). Many doctor visits over five months, including procedures and pelvic floor physiotherapy, pushed their baseline from moderate to moderate-severe, with a crash after every visit; they were in a bad spot and unsure what to do.
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What they tried
Also tried
Their words about each treatment
- pelvic floor PT · Not said
I've already spaced them out to 1 or 2 visits a month and it's still too hard on me
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 3 years before April 2025 | bedbound with chronic severe pelvic painI've been bedbound for 3 years now already due to chronic severe pelvic pain (Suspected Endometriosis)In context ↗ | Severe |
| over the last 5 months before April 2025 | crashed after every doctor visit, procedure and pelvic floor PTmy baseline has gotten much worse from all of the visits. I keep crashing after every visit.In context ↗ | Severe |
| 2025-04-18 | still crashing after each visit, spaced to 1-2 a monthI've already spaced them out to 1 or 2 visits a monthIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I keep crashing after every visit.
In context ↗ - Pain & fibromyalgia
I've been bedbound for 3 years now already due to chronic severe pelvic pain (Suspected Endometriosis)
In context ↗ - Sleep problems
I can't even sleep very long without getting severe stabbing pains.
In context ↗