Long COVID
Moderate → no benefitIll for 3 years
Crashing with long COVID, still fatigued after LDN and CPAP
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 3 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
my weird symptoms, chronic fatigue, and long-covid in general
In context ↗ - At worst: Moderate
tried to do 11 minutes walking on the treadmill and 2.5 minutes of the eliptical and rowing machine ... I had to go lie down in the car
In context ↗ - Now: No benefit
I've hit bottom, bounced up, hit bottom again, thought I was getting better, and crashed back down, over and over again.
In context ↗ - Began after: COVID
a long-covid clinic and my post-covid doctor
Summary
They were 56 when diagnosed in 2022 and described repeated cycles of hitting bottom and crashing back down, with job loss and financial ruin. They tried extra vegetables and fruit, more sleep, water, relaxation and meditation, and later LDN, and CPAP for recently diagnosed sleep apnoea, but still felt more fatigued. By March 2025 they were tired and unable to think or remember well, and had to lie down in the car after 11 minutes on a treadmill.
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What they tried
Also tried
CPAP therapy· Helped · wore offmore medication for the palpitations· Helped11 minutes walking on the treadmill and 2.5 minutes of the eliptical and rowing machine· Worseextra veggies, fruits, more sleep, water, time for relaxing· Not saidmeditating· Not saidLDN· Not said
Their words about each treatment
- extra veggies, fruits, more sleep, water, time for relaxing · Not said
I'm trying extra veggies, fruits, more sleep, water, time for relaxing
In context ↗ - meditating · Not said
more sleep, water, time for relaxing, and meditating
In context ↗ - CPAP therapy · Helped
CPAP therapy seemed to help at first, but overnight oxygen testing while using the CPAP still showed issues with oxygen saturation dropping
In context ↗ - LDN · Not said
I'm on LDN, among other things, but feeling even more fatigued than usual
In context ↗ - more medication for the palpitations · Helped
I was given more medication for the palpitations, and it seems to help a little
In context ↗ - 11 minutes walking on the treadmill and 2.5 minutes of the eliptical and rowing machine · Worse
I visited the gym and tried to do 11 minutes walking on the treadmill and 2.5 minutes of the eliptical and rowing machine ... I had to go lie down in the car
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 22 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| spring 2022 | long COVID began, diagnosed that year at 56I've been on this "journey" since spring of '22In context ↗ | Not stated |
| 2024-02-10 | repeated cycles of bottoming out and crashing back down, job loss and financial ruinI've hit bottom, bounced up, hit bottom again, thought I was getting better, and crashed back down, over and over again.In context ↗ | Moderate |
| 2025-03-22 | crashed after 11 minutes on the gym treadmill and 2.5 minutes on the elliptical and rowing machineI had to go lie down in the car while my husband finished his exercises.In context ↗ | Moderate |
| 2025-03-22 | still exhausted and cognitively impaired, more fatigued than usual on LDNI'm so tired of being tired and unable to think right or remember things well.In context ↗ | Moderate |
Adverse events
- Low-dose naltrexone“I'm on LDN, among other things, but feeling even more fatigued than usual” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaSleep problems
Their words about their symptoms
- Brain fog
unable to think right or remember things well
In context ↗ - POTS & dysautonomia
she said maybe it's from dysautonomia, giving me tachycardia, or POTS symptoms at night
In context ↗ - Sleep problems
I was recently diagnosed with obstructive and central sleep apnea with severe hypoxia
In context ↗ - Heart symptoms & palpitations
I was given more medication for the palpitations, and it seems to help a little
In context ↗ - Muscle weakness
I've had sudden weakness in both arms.
In context ↗ - Anxiety & low mood
my anxiety and ADD have gotton much worse
In context ↗ - Gut problems
getting shaky and nauseaus when I visited the gym
In context ↗