ME/CFS
Very severe → no benefitIll for 4.5 years
Bedridden with ME/CFS, still bedridden; carnitine and ALA brought no lasting benefit
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 4.5 years
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
I knew covid would be bad for me having previous me/cfs
In context ↗ - At worst: Very severe
It have had 2 episodes of being totally bedridden for 7 months
In context ↗ - Now: No benefit
After the Moderna, I have never got back to my former self. ... Its almost 5 years and have not improved.
- Began after: a vaccination
15 minutes after the vaccine is when I got severe symptoms.
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
They had ME/CFS before a Moderna vaccine in April 2021, then collapsed within 15 minutes and developed severe autonomic and neurological symptoms. Two seven-month stretches left them totally bedridden, and for months they could not stand longer than a minute. Carnitine and ALA brought a brief improvement that never stuck. Almost five years on they were still bedridden, unable to get antivirals in Canada.
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What they tried
Also tried
carnitine· Helped · wore offALA· Helped · wore offherbs for herpesviruses· No changeBorn Free Protocol (Joshua Leisk)· Not said
Their words about each treatment
- Born Free Protocol (Joshua Leisk) · Not said
I have been researching it for years and I had already did everything on his protocol including the NAPDH oxidate inhibitors.
In context ↗ - herbs for herpesviruses · No change
the herbs I have tried for it don’t cut it
In context ↗ - carnitine · Helped
There was one period I got a bit better with carnitine and ALA but it never stuck.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2021 | Collapsed 15 minutes after Moderna vaccine; could barely walk15 minutes after the vaccine is when I got severe symptoms. My body just collapsed and I could barely walk afterIn context ↗ | Severe | |
| — | Two episodes of being totally bedridden for seven monthsIt have had 2 episodes of being totally bedridden for 7 monthsIn context ↗ | Very severe | |
| — | A bit better for one period on carnitine and ALA, but it never stuckThere was one period I got a bit better with carnitine and ALA but it never stuck.In context ↗ | Severe | L-carnitine |
| 2026-02-03 | Still bedridden almost five years after the vaccineI am bedridden by the Moderna since 15 min afterIn context ↗ | Very severe |
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
neuropathy since 15 min after the vaccine from Moderna
In context ↗ - Heart symptoms & palpitations
severe fatigue and cardiac problems
In context ↗ - Gut problems
I have similar symptoms with nausea
In context ↗ - Muscle weakness
My body just collapsed and I could barely walk after
In context ↗