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Long COVID Moderate → much betterIll 16 months before improving or writingNeeds ongoing treatment

Long COVID breathlessness and chest pain, much better after nebuliser and pulmonary rehab

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
16 months
Last post
Jul 2021
In their words
  • Condition: Long COVIDI’m a former ICU RN who is also a long hauler. In context ↗
  • At worst: ModerateI could barely walk up the stairs without getting winded. I always felt like I could never empty my lungs and had debilitating chest pain for many months. In context ↗
  • Now: Much betterIt helped my breathing a lot, to the point that I can do moderate exercises. It still gets worse when the air quality drops or when the temperature suddenly drops. In context ↗
  • Began after: COVIDI’m a former ICU RN who is also a long hauler. I got sick last March.
Read from 7 of their posts and comments; links to the 4 this page draws on

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Summary

Comet 54941, a former ICU nurse, fell ill in March 2020 with long COVID: breathlessness, asthma-like airway problems and debilitating chest pain, and could barely climb stairs. Six months brought no improvement. A long-acting bronchodilator nebuliser eased the chest pain, and pulmonary rehab she called a game changer, letting her walk almost 25 minutes and exercise moderately. Her airway stays over-reactive and she will probably be on inhalers and nebulisers for life.

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What they tried

Also tried

long acting bronchodilator nebulizer treatment· Helpedalbuterol· Helpedsteroid inhaler· Not said
Their words about each treatment
  • prednisone (40mg of steroids) · HelpedSteroids were the only thing that made it better and now I’m on a steroid inhaler. In context ↗
  • long acting bronchodilator nebulizer treatment · HelpedThe chest pain finally resolved after starting long acting bronchodilator nebulizer treatment. In context ↗
  • pulmonary rehab · Helped a lotThis was a game changer. I can now walk almost 25 minutes without sob or asthma attacks! In context ↗
  • albuterol · Helpedresponsive to albuterol and steroid treatment, but only to a certain extent In context ↗
  • steroid inhaler · Not saidnow I’m on a steroid inhaler In context ↗

Approaches: Other drugs and medicines · Physiotherapy and rehab

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2020fell ill with long COVID after working as an ICU nurseI got sick last March. Developed severe asthma and strange breathing issues. I could barely walk up the stairs without getting winded. In context ↗Moderate
about six months inno improvement, still short of breath with chest painAfter about six months, no improvements, and repeatedly being told to “give it time” In context ↗Moderate
early 2021chest pain resolved and breathing much better after nebulised bronchodilator and pulmonary rehabThis was a game changer. I can now walk almost 25 minutes without sob or asthma attacks! In context ↗Mild
July 2021breathing much better, able to exercise moderately, airway still over-reactiveIt helped my breathing a lot, to the point that I can do moderate exercises. It still gets worse when the air quality drops or when the temperature suddenly drops. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI could barely walk up the stairs without getting winded. In context ↗
  • Heart symptoms & palpitationshad debilitating chest pain for many months. The chest pain finally resolved after starting long acting bronchodilator nebulizer treatment. In context ↗

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