ME/CFS
Outcome unclear
ME/CFS fatigue: pacing alone failed, then pacing with mind-body approach
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Sep 2022
In their words
- Condition: ME/CFS
When I was dealing with CFS symptoms, there were periods where I was actually sleeping "normally"
In context ↗ - Began after: stress or burnout
the origin and root cause were from a build up of psychological factors and trauma that had not yet been addressed
Read from 8 of their posts and comments; links to the 4 this page draws on
Summary
Dusk 49666 described ME/CFS symptoms including fatigue and said strict pacing alone had failed several times. They said recovery came only after pairing pacing with a mind-body approach, seeing symptoms as brain-generated, plus journaling, meditation, somatic tracking, therapy and a very slow increase in activity. They reported this approach ultimately worked for them in September 2022 posts.
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What they tried
Also tried
mind body approach· Helped a lotextremely slow increase in activity· Helpedpacing· Helpedjournaling· Helpedsomatic tracking· Helpedmeditation· Helpeda therapist· Helpedsleep hacks like no phone in bed, blackout curtains· Helped
Their words about each treatment
- extremely slow increase in activity · Helped
coupled with pacing and extremely slow increase in activity ultimately did it
In context ↗ - pacing · Helped
Pacing coupled with this approach is what ultimately worked for me
In context ↗ - mind body approach · Helped a lot
The things that helped most were gaining a full understanding of what was actually going on
In context ↗ - journaling · Helped
techniques like journaling (very important), meditation, somatic tracking
In context ↗ - somatic tracking · Helped
somatic tracking, coupled with pacing
In context ↗ - meditation · Helped
Solving underlying anxiety through meditation, journaling, etc.
In context ↗ - a therapist · Helped
I also saw a therapist.
In context ↗ - sleep hacks like no phone in bed, blackout curtains · Helped
using various sleep hacks like no phone in bed, blackout curtains, etc. helped solve the issue of getting to sleep
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | felt a bit worse before starting to get betterThere was a time where I actually felt like I got a bit worse before I stated getting betterIn context ↗ | Moderate | |
| 7 y | recovered after pacing plus mind-body workPacing coupled with this approach is what ultimately worked for meIn context ↗ | Recovered | Sarno / TMS / somatic tracking / JournalSpeak |
Adverse events
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)“There was a time where I actually felt like I got a bit worse before I stated getting better, it was weird.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I had some form of PEM
In context ↗ - Brain fog
of course fatigue/brain fog
In context ↗ - Sleep problems
there were periods where I was actually sleeping "normally", and other times poorly
In context ↗ - Anxiety & low mood
Solving underlying anxiety through meditation, journaling, etc.
In context ↗