Long COVID with brain injury; NAC and guanfacine helped, then ME/CFS relapse
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
I was reinfected with one of the may 2022 omicrons and developed me/cfs
In context ↗ - Now: Relapsed
I had recovered probably 75% when I was reinfected with one of the may 2022 omicrons and developed me/cfs.
In context ↗ - Began after: COVID
Original variant gave me basically a brain injury.
In context ↗
Summary
Petrel 67648 developed long COVID after the original SARS-CoV-2 variant, with cognitive problems described as a brain injury. A course of N-acetyl cysteine and guanfacine fixed POTS-like symptoms after two months. They had recovered about 75% from the initial illness when a May 2022 Omicron reinfection led to ME/CFS.
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What they tried
Their words about each treatment
- N-acetyl Cysteine · Helped a lot
I did this treatment and it fixed my POTS-like symptoms after 2 months.
In context ↗ - Guanfacine · Helped a lot
they used 600mg N-acetyl Cysteine and 1 or 2mg Guanfacine. I did this treatment and it fixed my POTS-like symptoms after 2 months.
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| original variant | COVID infection with cognitive symptomsOriginal variant gave me basically a brain injury.In context ↗ | Not stated |
| before May 2022 | recovered about 75%I had recovered probably 75%In context ↗ | Mild |
| May 2022 | Omicron reinfection; developed ME/CFSI was reinfected with one of the may 2022 omicrons and developed me/cfs.In context ↗ | Not stated |
| 2023-07-14 | POTS-like symptoms fixed after treatmentI did this treatment and it fixed my POTS-like symptoms after 2 months.In context ↗ | Not stated |
| 2023-12-27 | reports ME/CFS after reinfection | Not stated |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Difficulty focusing, irritable, slower, couldn't manage multiple tasks at once, mood dysregulation, couldn't follow directions.
In context ↗ - POTS & dysautonomia
it fixed my POTS-like symptoms after 2 months.
In context ↗
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