Long COVID
No benefitIll for 19 months
Mostly in bed with long COVID, still ill with no lasting improvement
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- 19 months
- Last post
- Nov 2023
In their words
- Condition: Long COVID
So I've had Long Covid since April 2022 now.
In context ↗ - Now: No benefit
It's been absolutely horrible and it just went downhill for a really, really long time. No improvements in sight.
In context ↗ - Began after: COVID
I've had long Covid since April now
In context ↗
Read from 9 of their posts and comments; links to the 7 this page draws on
Summary
A university student who developed long Covid in April 2022 and was still ill 19 months later, mostly in bed with severe muscle weakness, brain fog, GI problems and panic attacks. Acupuncture briefly eased their concentration and brain fog but the benefit wore off, and Iberogast helped their nausea. Pushing themselves set them back, and by late 2023 their anxiety and depression had worsened.
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What they tried
Also tried
Their words about each treatment
- acupuncture · Helped
I had 5 sessions, it helped with my concentration difficulties and the brain fog, seemed to help the fatigue for a bit but not for long.
In context ↗ - drinking ridiculous amounts of water · Helped
acupuncture and drinking ridiculous amounts of water seems to help
In context ↗ - upping my activity level · Not said
I've started upping my activity level slightly; I am at a facility where I am in therapy as well as doing art-and ergotherapy, and very little exercise, but it is definitely an increase from my previous day-to-day. Hoping it'll help and not make anything worse.
In context ↗ - Iberogast · Helped
my nausea genuinely vanishes and I can eat normally. It's a lifesaver.
In context ↗ - therapy · Helped
It's the one thing that kind of helped me, having someone who listened and validated what I am going through.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2022 | Long Covid beganI've had long Covid since April nowIn context ↗ | Not stated |
| August 2022 | Pushed themselves after a small breakthrough and symptoms got worse, setting recovery back weeksI had a small breakthrough this week, only for my symptoms to get worse the next day when I thought I'd push myselfIn context ↗ | Moderate |
| June 2023 | In bed most of the day; severe muscle weakness and legs giving out, needing one or two naps a dayI've basically been in bed most of the day ... Severe muscle weaknessIn context ↗ | Severe |
| June 2023 | Neurological symptoms improved, fewer and milder flare-ups, more therapy and light activity at a facilityI've also had less severe flare-ups, and less flare-ups in general ... I seem to recover a little faster nowIn context ↗ | Severe |
| November 2023 | Still ill, with anxiety and depression much worse; psychotherapy said it could not helpmy anxiety and depression have gotten really bad due to LCIn context ↗ | Severe |
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
only for my symptoms to get worse the next day when I thought I'd push myself
In context ↗ - Brain fog
concentration problems and brain fog are back
In context ↗ - POTS & dysautonomia
I've been dealing with the exact same thing you're dealing with
In context ↗ - Gut problems
what really helps me with my GI issues is something called Iberogast
In context ↗ - Muscle weakness
Severe muscle weakness
In context ↗ - Heart symptoms & palpitations
my heart was pounding after waking up, too
In context ↗ - Anxiety & low mood
I've been having panic attacks, and just been really anxious
In context ↗