ME/CFS
No benefitIll for 2 yearsNeeds ongoing treatment
ME/CFS brain fog and low blood pressure for two years; no benefit from supplements or B12
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 2 years
- Last post
- Oct 2017
In their words
- Now: No benefit
I suffer most days for it
In context ↗ - Began after: another virus
they found cytomegalo virus (CMV) when I had a serious bronchitis spell
Summary
Birch 32034 has had severe brain fog and low blood pressure spells for about two years, following a serious bronchitis illness when CMV was found. Provigil was the only treatment that helped, but supplies were limited to one dose a day and sometimes unavailable for months. Many supplements and biweekly B12 injections did nothing. No recovery is described.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- Provigil · Helped
The only thing thats has helped was taking Provigil ... with stocks limited I can only take 1 a day (where I really need 2)
In context ↗ - biweekly B12 injections · No change
even biweekly B12 injections etc. Nothing helps
In context ↗ - supplement regiments · No change
I've gone through many supplement regiments ... Nothing helps
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| a couple of years ago | serious bronchitis; CMV foundthey found cytomegalo virus (CMV) when I had a serious bronchitis spell, it was the sickest I have ever beenIn context ↗ |
| 2017-10-13 | still has severe brain fog and low blood pressure spells; Provigil helps but supply is limitedI suffer most days for it, severe brain fog coupled with low blood pressure spellsIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Brain fog
severe brain fog
In context ↗ - POTS & dysautonomia
low blood pressure spells (80/90 over 50/60 range)
In context ↗