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Long COVID Severe → near normalIll 3 years before improving or writing

Bedbound at times with long COVID, now mostly back to normal

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 years
Last post
Sep 2023
In their words
  • Condition: Long COVIDMy stats: Covid Jan-Feb 2020, LH symptoms starting March 2020. In context ↗
  • At worst: SevereIt’s a huge progress compared to before when I was bed bound. In context ↗
  • Now: Near normalMuch better now! It took three years to recover naturally, but I don’t get the limb heaviness, body weakness and intense fatigue like I used to. In context ↗
  • Began after: COVIDI got what seemed to be covid back in January-February 2020. I was sick for two months but recovered. In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on

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Summary

Prairie 13973 developed long COVID after a COVID-like illness in January-February 2020, with daily fatigue, heavy limbs and crashes that left them bedbound at times. Symptoms began improving around August 2021, with consistent gains from late 2021. By late 2022 they were able to walk/jog an hour three to four times a week and had developed pre-diabetes and high cholesterol; by late 2023 they were mostly back to normal days with only occasional weakness.

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What they tried

Their words about each treatment
  • iron supplementation · No changeafter iron supplementation and blood tests for iron and vitamin b my levels improved and got in normal ranges. Fatigue/weakness is still happening everyday In context ↗
  • Pfizer vaccine (two doses) and Moderna booster · Not saidOne thing to note is that I'm fully vaccinated, not sure if that had any effect on it. In context ↗
  • omega 3 · Not saidI also started taking omega 3 and vitamin D everyday, but not sure if that's a contributing factor. In context ↗
  • resting up all day · Not saidFor me I rest up all day when I meet up with friends, then immediately pass out when returning. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
January-February 2020COVID-like illness, sick for two monthsI got what seemed to be covid back in January-February 2020. I was sick for two months but recovered. In context ↗Not stated
March 2020daily fatigue and heavy limbs beganLH symptoms starting March 2020 ... Between 3-5pm daily I start feeling overwhelming body weakness and my limbs feel very heavy, can’t focus, I have to stop in the middle of work and just pass out in bed.Mild
June 2021crashing and bedridden every other dayI’d randomly feel better and hopeful one day but the next day it’s a crash and I’m bedridden again. In context ↗Severe
July 2021fatigue less intense and cycling; able to go for walksabout couple weeks to a month ago, things started to change and my fatigue doesn't feel as intense as before and is cycling on/off ... I finally was physically able enough to start going out for walks now about couple weeks agoMild
August 2021symptoms began coming and goingStarted feeling slight progress around August 2021, where symptoms would subside for few days, then come back regularly another set of few days In context ↗Mild
November-December 2021consistent progress that did not regressNoticeable consistent progress where it hasn't yet regressed since maybe Nov-Dec 2021 In context ↗Mild
December 2022back to regular life, out for dinner on work days and walking/joggingI’m finally getting back to my regular life after 3 years in ... I’m now able to actually do simple things like go out for dinner on a work day or walking/jogging for one hour 3-4 times a week. In context ↗Near normal
September 2023only occasional heavy weakness, stays up through the dayMuch better now! It took three years to recover naturally, but I don’t get the limb heaviness, body weakness and intense fatigue like I used to. In context ↗Near normal

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessoverwhelming body weakness and my limbs feel very heavy In context ↗
  • Post-exertional malaiseI rest up all day when I meet up with friends, then immediately pass out when returning. In context ↗

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