Bedbound at times with long COVID, now mostly back to normal
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2023
In their words
- Condition: Long COVID
My stats: Covid Jan-Feb 2020, LH symptoms starting March 2020.
In context ↗ - At worst: Severe
It’s a huge progress compared to before when I was bed bound.
In context ↗ - Now: Near normal
Much better now! It took three years to recover naturally, but I don’t get the limb heaviness, body weakness and intense fatigue like I used to.
In context ↗ - Began after: COVID
I got what seemed to be covid back in January-February 2020. I was sick for two months but recovered.
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
Prairie 13973 developed long COVID after a COVID-like illness in January-February 2020, with daily fatigue, heavy limbs and crashes that left them bedbound at times. Symptoms began improving around August 2021, with consistent gains from late 2021. By late 2022 they were able to walk/jog an hour three to four times a week and had developed pre-diabetes and high cholesterol; by late 2023 they were mostly back to normal days with only occasional weakness.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- iron supplementation · No change
after iron supplementation and blood tests for iron and vitamin b my levels improved and got in normal ranges. Fatigue/weakness is still happening everyday
In context ↗ - Pfizer vaccine (two doses) and Moderna booster · Not said
One thing to note is that I'm fully vaccinated, not sure if that had any effect on it.
In context ↗ - omega 3 · Not said
I also started taking omega 3 and vitamin D everyday, but not sure if that's a contributing factor.
In context ↗ - resting up all day · Not said
For me I rest up all day when I meet up with friends, then immediately pass out when returning.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January-February 2020 | COVID-like illness, sick for two monthsI got what seemed to be covid back in January-February 2020. I was sick for two months but recovered.In context ↗ | Not stated |
| March 2020 | daily fatigue and heavy limbs beganLH symptoms starting March 2020 ... Between 3-5pm daily I start feeling overwhelming body weakness and my limbs feel very heavy, can’t focus, I have to stop in the middle of work and just pass out in bed. | Mild |
| June 2021 | crashing and bedridden every other dayI’d randomly feel better and hopeful one day but the next day it’s a crash and I’m bedridden again.In context ↗ | Severe |
| July 2021 | fatigue less intense and cycling; able to go for walksabout couple weeks to a month ago, things started to change and my fatigue doesn't feel as intense as before and is cycling on/off ... I finally was physically able enough to start going out for walks now about couple weeks ago | Mild |
| August 2021 | symptoms began coming and goingStarted feeling slight progress around August 2021, where symptoms would subside for few days, then come back regularly another set of few daysIn context ↗ | Mild |
| November-December 2021 | consistent progress that did not regressNoticeable consistent progress where it hasn't yet regressed since maybe Nov-Dec 2021In context ↗ | Mild |
| December 2022 | back to regular life, out for dinner on work days and walking/joggingI’m finally getting back to my regular life after 3 years in ... I’m now able to actually do simple things like go out for dinner on a work day or walking/jogging for one hour 3-4 times a week.In context ↗ | Near normal |
| September 2023 | only occasional heavy weakness, stays up through the dayMuch better now! It took three years to recover naturally, but I don’t get the limb heaviness, body weakness and intense fatigue like I used to.In context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“I just had my first Pfizer shot a day ago, so far sore arm is the most noticeable, followed by a bit more fatigued than my usual fatigue.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
overwhelming body weakness and my limbs feel very heavy
In context ↗ - Post-exertional malaise
I rest up all day when I meet up with friends, then immediately pass out when returning.
In context ↗