ME/CFS
Severe → no benefit
Largely bedridden with ME/CFS for years, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- a few years
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
have lost most of the muscle condition in my arms from being largely bedridden for the last few years
In context ↗ - At worst: Severe
being largely bedridden for the last few years
In context ↗ - Now: No benefit
being largely bedridden for the last few years
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Posting in r/cfs in August 2026, this user described being largely bedridden for the last few years, with arms that tire and get sore quickly after losing muscle condition. They read ebooks using a neck phone holder and a bluetooth ring to turn pages, and type manually with rests, taking about 15 minutes to type a comment. Voice-to-text sound is unbearable.
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What they tried
Also tried
phone holder· Not saidbluetooth ring with buttons· Not said
Their words about each treatment
- phone holder · Not said
I use a phone holder that goes around my neck and holds my phone up in front of my face
In context ↗ - bluetooth ring with buttons · Not said
a bluetooth ring with buttons (usually called a tiktok ring or something similar) to turn the pages
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| the last few years before August 2026 | largely bedridden, lost muscle condition in armsbeing largely bedridden for the last few yearsIn context ↗ | Severe |
| 2026-08-02 | still largely bedridden, reading ebooks with phone holder and page-turner ringit's taken me about 15 minutes to type this with a few rests lolIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
have lost most of the muscle condition in my arms from being largely bedridden
In context ↗ - Pain & fibromyalgia
they get tired and sore really quickly
In context ↗ - Light & noise sensitivity
I can't bear the sound
In context ↗