Moderate to severe ME/CFS, now somewhat better after half-dose Paxlovid and memantine
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
Moderate to severe MECFS and POTS here.
In context ↗ - At worst: Moderate
Moderate to severe MECFS and POTS here
In context ↗ - Now: Somewhat better
my WBC has seemed to be low, then slightly creep up as I've gotten marginally better (still moderate)
In context ↗
Read from 13 of their posts and comments; links to the 7 this page draws on
Summary
A US aerospace engineer with ME/CFS and POTS since his late twenties, he was moderate to severe, reached the end of short-term disability and was applying for long-term, and hoped to try a few hours of work three days a week. A half-dose Paxlovid course gave more energy and less sleep need, the first thing in years to help, but a repeat course didn't have the same impact. Memantine eased his brain fog and thinking, and TMS helped.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset, trigger not statedI've had CFS for a few years nowIn context ↗ | Not stated |
| 2023-05 | short-term disability ended, applying for long-term; planned to try part-time workYesterday I reached the end of my short term disability and am applying for long term. I do plan on *trying* to work part time soon, maybe 3 hours 3 days a weekIn context ↗ | Moderate |
| 2023-10-25 | more energy and sleeping less on split-dose PaxlovidI started a 5 day paxlovid treatment(split over 10 days by taking half dose) and have definitely seen results. More energy, sleeping lessIn context ↗ | Moderate |
| 2024-08 | some reduction in brain fog on memantineI recently started taking Memantine (an Alzheimer medication) and have had some reduction with brian fog.In context ↗ | Moderate |
| 2024-11-01 | TMS helped; EEG low percentilesI had an eeg and it was in the low percentiles in many areas. TMS helpedIn context ↗ | Moderate |
| 2026-03-27 | memantine 10 mg helps with conversations and reading; still moderate10mg helped me with day to day tasks like holding a conversation and reading.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I recently started taking Memantine (an Alzheimer medication) and have had some reduction with brian fog.
In context ↗ - Sleep problems
I've struggled with sleep my whole life, even pre ME.
In context ↗ - POTS & dysautonomia
Moderate to severe MECFS and POTS here.
In context ↗