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ME/CFS Somewhat better

ME/CFS with sleep needing several night-time medications, somewhat better with fresh air

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Jun 2026
In their words
  • Now: Somewhat betterI notice a significant improvement in my symptoms the more fresh air I get In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user in r/cfs described needing a handful of night-time medications (amitriptyline, gabapentin, baclofen or tonmya, melatonin, magnesium, CBD) to sleep. They mentioned creatine, PQQ and thiamine, said a too-high liothyronine dose made them more hyperthyroid until it was lowered, and that more fresh air gave a significant improvement in symptoms. No onset date or overall outcome was given.

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What they tried

Their words about each treatment
  • Creatine · HelpedCreatine, PQQ, thiamine In context ↗
  • liothyronine · WorseThe dose of liothyronine I was put on was too high and caused me to be more hyperthyroid. In context ↗
  • amitriptyline · Not saida handful of different meds at night to go to sleep (amitriptyline, gabapentin, baclofen or tonmya, melatonin, magnesium, cbd) In context ↗
  • fresh air · HelpedI notice a significant improvement in my symptoms the more fresh air I get In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2026-01-11reported supplements helped cognitive symptomsCreatine, PQQ, thiamine In context ↗Creatine
2026-03-16slept a little more after lowering too-high liothyronine doseI started sleeping a little more when I decreased the dose In context ↗Liothyronine (Cytomel)
2026-06-20significant symptom improvement with more fresh airI notice a significant improvement in my symptoms the more fresh air I get In context ↗

Adverse events

  • Liothyronine (Cytomel)“The dose of liothyronine I was put on was too high and caused me to be more hyperthyroid. I started sleeping a little more when I decreased the dose.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms

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