ME/CFS fatigue for two years, stopped them working, still no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 2 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I eventually recovered but then what feels exactly like CFS started about 6 months later
In context ↗ - At worst: Moderate
It's so severe I can't work and can barely function at home some days
In context ↗ - Now: No benefit
this chronic fatigue started one day and never left
In context ↗ - Began after: COVID
even though I recovered from long covid, I still had enough damage done to my body that putting alcohol into it everyday for 6 months completely screwed me up again but in a different way
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
Birch 82096 had long COVID twice, for 8 and then 18 months, with respiratory, POTS, heart and immune symptoms, recovering fully both times. After heavy daily drinking began, chronic fatigue started within six months; it has lasted two years, eventually stopping them working. Progesterone cream was the only thing that helped the long COVID symptoms. They quit drinking a few weeks before writing, hoping to recover.
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What they tried
Their words about each treatment
- prescription amphetamines · Worse
Instead of giving me the energy they used to give me they just speed up my mind- not my physical energy.
In context ↗ - progesterone cream · Helped
The only thing that ever helped my long covid symptoms was progesterone cream.
In context ↗ - quitting alcohol · Not said
Finally quit drinking a few weeks ago and I'm praying that months without alcohol my body will recover.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | First long COVID infectionFirst time I had it was for 8 months then got better and completely recovered.In context ↗ | Not stated |
| 8 mo | Recovered from first long COVIDthen got better and completely recoveredIn context ↗ | Recovered |
| 20 mo | Second long COVID infectionLess than a year later I got it again and it lasted for 18 months.In context ↗ | Not stated |
| 3.2 y | Second long COVID stopped; full recoveryThen it just stopped and I completely recovered.In context ↗ | Recovered |
| 4 y | Chronic fatigue began after months of heavy daily drinkingI started drinking alcohol heavily like everyday and in less than 6 months this chronic fatigue started one day and never left.In context ↗ | Mild |
| 5.8 y | Worsened until unable to workIt's so severe I can't work and can barely function at home some daysIn context ↗ | Moderate |
| 2026-07 | Quit drinking a few weeks earlier, hoping the fatigue will liftFinally quit drinking a few weeks ago and I'm praying that months without alcohol my body will recover.In context ↗ | Moderate |
Adverse events
- Stimulants (unspecified)“they just speed up my mind- not my physical energy ... with the negative side effects of the medication” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Long covid had tons of symptoms for me not just respiratory but pots symptoms
In context ↗ - Breathlessness
not just respiratory but pots symptoms and horrible immune system symptoms
In context ↗ - Heart symptoms & palpitations
I had multiple symptoms an addition to that like respiratory, heart, nervous system etc.
In context ↗ - Flu-like symptoms
My immune system flares were horrible like my body was fighting an illness
In context ↗