ME/CFS
Mild → no benefit
ME/CFS with zero energy and worsening memory, no improvement, too exhausted for college
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jul 2022
In their words
- Condition: ME/CFS
ended up getting a CFS diagnosis
In context ↗ - At worst: Mild
I am very behind in my college classes, and I dont have the mental energy or physical energy to do anything about it
In context ↗ - Now: No benefit
I just know that I dont have any energy no matter how much I rest or sleep and that my memory and ED is even more fucked than it was before
In context ↗ - Says they never had: Post-exertional malaise
I didnt notice any crashing
Read from 9 of their posts and comments; links to the 4 this page draws on
Summary
A 21-year-old man in Sweden was diagnosed with CFS after depression and anxiety treatment did not fit his zero energy, hair loss and worsening memory. Sertraline and an SNRI gave side effects and he stopped them. A single 30 mg Vyvanse from a friend restored his memory and focus and eased the fatigue, but Swedish doctors cannot prescribe stimulants for CFS, leaving him too exhausted to keep up with college.
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What they tried
Also tried
Their words about each treatment
- Setraline · Worse
I tried Setraline for the depression, but didnt like the side effects so I just quit cold turkey
In context ↗ - different snri meds · Worse
Either way after that I got different snri meds which I also didnt like
In context ↗ - Vyvanse · Helped
Worked wonders for me at least
In context ↗ - nicotine (nicotine pouches) · Helped
nicotine (nicotine pouches) are somewhat a decent sub for a stimulant
In context ↗ - Caffeine · No change
Caffine does nothing for me sadly
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | no energy, hair falling out, memory and concentration problems; diagnosed with CFSI had 0 energy and my hair started to fall outIn context ↗ | Mild | |
| 2022-07-18 | took a friend's 30 mg Vyvanse; memory, focus and calm returned and fatigue easedAfter taking it, I was amazed. I could remember things, felt calm and still felt the fatigue, but not that bad anymoreIn context ↗ | Mild | Lisdexamfetamine (Vyvanse, Elvanse) |
| 2022-07-20 | still no energy despite rest; stimulants cannot be prescribed for CFS in Sweden, behind in collegeI dont have any energy no matter how much I rest or sleepIn context ↗ | Mild |
Adverse events
- Sertraline (Zoloft)“I tried Setraline for the depression, but didnt like the side effects” In context ↗ Side effects
- Sertraline (Zoloft)“so I just quit cold turkey with disgusting brain zaps for like 2 weeks” In context ↗ Withdrawal problems
- Sertraline (Zoloft), Antidepressants (unspecified)“Pretty much all SSRI and SNRI fucks up my vision for some reason xD” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
Memory is totally fucked
In context ↗ - Sleep problems
I usually go to bed at 11, but will fall asleep at around 3-4am when I am so exhausted that I finally passes out
In context ↗ - Anxiety & low mood
no background anxiety that's very annoying
In context ↗ - Hair loss
my hair started to fall out
In context ↗ - Vision problems
I get very blurry vision
In context ↗