Brain Retraining Didn't Help Shelley: What Finally Worked!
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving
- 2 years
- Published
- No date given
In their words
- Condition: Long COVID
all of my symptoms sound like long Co
Watch the video ↗From the video’s captions - At worst: Moderate
I was you know complete kind of housebound
Watch the video ↗From the video’s captions - Now: Much better
I work parttime I'm doing my coaching training
Watch the video ↗From the video’s captions - Began after: COVID
I caught Co in January 2021
Watch the video ↗From the video’s captions
Summary
Shelley caught COVID in January 2021, was bed-bound for about 10 days, and was mostly housebound in 2022. She tried many holistic therapies and brain retraining with little lasting help. From 2023 she credited a nutritionist-guided diet that cleared many of her digestive symptoms, meditation and slowing down. She now works part-time and walks, but still has rest days; a COVID reinfection in September 2023 set her back.
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What they tried
What they credit
Also tried
Their words about each treatment
- acupuncture · No change
acupuncture energy healing pacing just resting
Watch the video ↗From the video’s captions - chiropractor · No change
a chiropractor massage therapist didn't get any relief from it
Watch the video ↗From the video’s captions - supplements (not named) · Not said
was trying all of the supplements
Watch the video ↗From the video’s captions - Icon (drug) · No change
I ended up paying like $300 for seven pills in Canada and I was like right this is going to help me that did not help me
Watch the video ↗From the video’s captions - taking the whole of November off to rest completely · No change
I took the whole of November off nothing improved
Watch the video ↗From the video’s captions - pacing · No change
energy healing pacing just resting
Watch the video ↗From the video’s captions - homeopathy · No change
Homeopathy functional medicine brain retraining nervous system programs everything
Watch the video ↗From the video’s captions - naturopaths · Not said
acupuncture massage Homeopathy naturopaths uh therapy pacing resting trauma work brain training
Watch the video ↗From the video’s captions - plant medicine · No change
even some like questionable plant medicine
Watch the video ↗From the video’s captions - brain retraining program · No change
I did the a brain retrain and a nervous system regulation program all at the same time
Watch the video ↗From the video’s captions - nutritionist-guided diet for gut healing · Helped
doing the diet and working with a nutritionist that really did help heal my gut
Watch the video ↗From the video’s captions - meditation, breath work, Yoga Nidra and visualization · Helped
meditation breath work all of these things have really helped me
Watch the video ↗From the video’s captions - slowing down and stripping back · Helped
just really slowing down like stripping back everything
Watch the video ↗From the video’s captions - time, patience and trusting the process · Helped
it's just been time patience slowing down
Watch the video ↗From the video’s captions - therapy to address old trauma · Helped
the therapy again the therapy was really good for a short while but then I felt like it was just ret traumatizing like talking about you know heavy stuff
Watch the video ↗From the video’s captions - Trauma work (EFT, EMDR, TRE) · Not said
I felt like it was just ret traumatizing
Watch the video ↗From the video’s captions
Approaches: Diet · Mind-body practices · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2021 | COVID in a Canadian ski resort; worst headache of her life, bedbound for 10 daysI caught Co in January 2021Watch the video ↗From the video’s captions | Severe | |
| after 10 days | Back to physical work at about 60%, with daily headaches and brain fogI think I'd probably made a 60% recovery and yeah just I had a lot of like brain fog malaiseWatch the video ↗From the video’s captions | Mild | |
| November 2021 | Stopped work to rest; nothing improved and she did not go backI took the whole of November off nothing improved and I didn't end up going back to workWatch the video ↗From the video’s captions | Moderate | |
| first year back in the UK, from February 2022 | Largely housebound, trying many treatmentsthe first year was kind of like I can't even remember like that Year's just complete blur I was you know complete kind of houseboundWatch the video ↗From the video’s captions | Moderate | |
| August 2023 | Slowing down, Yoga Nidra, meditation and gut work; 15,000 steps a day on holidayit got to like August last year and I was on holiday in Europe and I was able to do like 15,000 steps a day feeling really wellWatch the video ↗From the video’s captions | Mild | Meditation, yoga, breathwork |
| September 2023 | Caught COVID again and was set backI ended up getting Co again in September like shortly after I got home and I feel like that did set me back a little bitWatch the video ↗From the video’s captions | Not stated | |
| just over three years after onset | Walking, working part time, training as a coach; still some rest daysI am able to go for walks um I work parttime I'm doing my coaching training like there's a lot I can do but then there are still days where I need to rest or just be in bedWatch the video ↗From the video’s captions | Mild | Pacing and the energy envelope |
Adverse events
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)“because yeah they made me more stress” Watch the video ↗From the video’s captions Other
- Trauma work (EFT, EMDR, TRE)“I felt like it was just ret traumatizing” Watch the video ↗From the video’s captions Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I had a lot of like brain fog malaise
Watch the video ↗From the video’s captions - Heart symptoms & palpitations
all of the other symptoms that I was getting like chest pains
Watch the video ↗From the video’s captions - Headaches & migraine
I just kept getting these headaches every day
Watch the video ↗From the video’s captions - Gut problems
a lot of my digestive symptoms have completely gone now
Watch the video ↗From the video’s captions - Light & noise sensitivity
super sensitive to everything like light noise um smells
Watch the video ↗From the video’s captions - Post-exertional malaise
I pushed through for the whole summer like working and then when I wasn't at work I was literally like just in bed trying to recover
Watch the video ↗From the video’s captions
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