ME/CFS
No benefitIll for 18 months
Extreme fatigue with ME/CFS, still ill and no improvement from a pain programme
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 18 months
- Last post
- Sep 2022
In their words
- Condition: ME/CFS
diagnosed with fibromyalgia and CFS
In context ↗ - Now: No benefit
it wasn't going to help me (it didn't)
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Marsh 31571 was diagnosed with fibromyalgia and CFS a year or two before September 2022. In January 2022 they attended a pain programme of physical therapy, recreational therapy and CBT; it did not help, and pushing through extreme fatigue caused flares. They remained ill and did not credit a treatment, but said they now understood CFS and could avoid being pushed into similar programmes.
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What they tried
Also tried
Their words about each treatment
- pain program · Worse
it wasn't going to help me (it didn't) ... I just feel so upset all the times I was pushed into flares
In context ↗ - physical therapy · Worse
it was basic stuff like physical therapy, recreational therapy, stuff like that ... I was pushed into flares
In context ↗ - CBT · No change
mindset therapies so basically CBT ... it wasn't going to help me (it didn't)
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| a year or two before September 2022 | Diagnosed with fibromyalgia and CFSI was diagnosed with fibromyalgia and CFS a year or two agoIn context ↗ |
| January 2022 | Pain programme pushed them into flaresthis January I went to a pain program ... I was pushed into flaresIn context ↗ |
| 2022-09-28 | Still ill; understood CFS and avoided similar programmesnow I have an understanding of CFSIn context ↗ |
Adverse events
- “I just feel so upset all the times I was pushed into flares because people wouldnt listen to me.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
pushing through extreme fatigue causes flares
In context ↗ - Pain & fibromyalgia
diagnosed with fibromyalgia and CFS
In context ↗