ME/CFS for 12 years, now recovered after therapy and meditation
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 12 years
- Last post
- Jun 2021
In their words
- Condition: ME/CFS
The greatest lesson I have learned through CFS
In context ↗ - Now: Recovered
I was diagnosed at your age and recovered after 12 years
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They were diagnosed with ME/CFS and recovered after 12 years, a recovery they say was slowed by bereavements: three close people died within nine months of diagnosis and four family members died over five years. They credit therapy, meditation and restorative movement practices such as yoga, Feldenkrais and the Franklin method, along with self-compassion, and describe recovery as non-linear with bad days still.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Not said
If I could visit my younger self and offer advice it would be this: pace yourself.
In context ↗ - therapy · Helped
starting to come to terms with the early trauma of my childhood
In context ↗ - restorative movement practices (yoga, Feldenkrais, Franklin method) and meditation · Helped
restorative movement practices (yoga, Feldenrkrais, Franklin method) and meditation
In context ↗ - guided meditations · Helped
supports using guided meditations
In context ↗
Approaches: CBT & mindset · Mind-body practices
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| age 17 | diagnosed with ME/CFS at 17I was diagnosed at your ageIn context ↗ | Not stated |
| shortly after diagnosis | three close people died within nine monthsthe deaths of 3 close people in my life in the space of 9 months, shortly after my initial diagnosisIn context ↗ | Not stated |
| later on | four family members died over five yearsthe deaths of 4 family members in 5 yearsIn context ↗ | Not stated |
| 2021-06-29 | recovered after 12 yearsrecovered after 12 yearsIn context ↗ | Recovered |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I did not have the cognitive ability to read anything as a long as a book for years
In context ↗ - Anxiety & low mood
learning to let go of this idea of needing to "master" my emotions or "conquer" anxiety
In context ↗
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