ME/CFS
Moderate → no benefitIll for 5 years
Mostly housebound with ME/CFS, still brainfogged and no better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 5 years
- Last post
- Jun 2022
In their words
- Condition: ME/CFS
Basically depression on top of the ME/CFS.
In context ↗ - At worst: Moderate
I have been sick for 5 years now, I'd say I'm moderate (thats what I think at least). I'm mostly housebound.
In context ↗ - Now: No benefit
especially since it's been years now and I still feel this way.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Tern 10573 had been ill for five years, describing themselves as moderate and mostly housebound, with post-exertional malaise after any activity. Phases of trying to be more active, a balanced routine and hardcore bed rest all left them feeling bad or restless. Medication they were given for an initial diagnosis of depression made them feel worse. At the time of writing they were still brainfogged, with head pressure and low mood.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- trying to be somewhat active · Worse
These phases always ended really quick, because PEM kicked my ass.
In context ↗ - something more "balanced" · Helped
While I do get less PEM from this, I still feel pretty bad with this routine.
In context ↗ - "hardcore" resting · No change
resting more does not really help
In context ↗ - different medication for depression · Worse
It did not help one bit, quite the opposite, made me feel even worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2017 | ME/CFS onset; moderate, mostly houseboundI have been sick for 5 years now, I'd say I'm moderate (thats what I think at least). I'm mostly housebound.In context ↗ | Moderate |
| 2022-06-01 | still moderate and mostly housebound, out of ideas for a routineI'm mostly housebound.In context ↗ | Moderate |
Adverse events
- Antidepressants (unspecified)“I did try different medication for depression ... It did not help one bit, quite the opposite, made me feel even worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
These phases always ended really quick, because PEM kicked my ass.
In context ↗ - Brain fog
currently brainfogged and english is not my first language
In context ↗ - Headaches & migraine
Pressure on the head is also what I'll feel at times.
In context ↗ - Anxiety & low mood
I feel mentally down just because of this disease
In context ↗