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Long COVID Mild → no benefitIll for 20 months

Long COVID with daily chest pain and fatigue, no lasting improvement

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
20 months
Last post
Aug 2023
In their words
  • Condition: Long COVIDOver the course of 20 months, my pain has went from intermittent episodes per week to a daily occurrence. In context ↗
  • At worst: MildI can say that I'm not debilitated, but day-to-day living is a depressing chore In context ↗
  • Now: No benefitI've had moments where it felt like things were improving ... I've always reverted back to my 'baseline' + a little worse In context ↗
  • Began after: COVIDOver the course of 20 months, my pain has went from intermittent episodes per week to a daily occurrence. In context ↗
  • Says they never had: Gut problemsNo eye pain, nor digestive issues.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A person with long COVID described 20 months of chest pain that went from intermittent weekly episodes to a daily occurrence, returning on getting up and easiest on waking. They also reported chronic fatigue, occasional shortness of breath and new headaches, said they were not debilitated but found day-to-day living a depressing chore. Brief improvements, such as 48 hours without chest pain, always reverted to their baseline or slightly worse.

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Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetchest pain began as intermittent weekly episodesmy pain has went from intermittent episodes per week In context ↗Mild
—brief stretches of improvement, including 48 hours pain-freeI've had moments where it felt like things were improving ... (like a 48 hour stretch where I had no chest pain.) In context ↗Mild
2023-08-12chest pain daily, baseline slightly worseI've always reverted back to my 'baseline' + a little worse In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsmy pain has went from intermittent episodes per week to a daily occurrence In context ↗
  • Breathlessnessendure occasional SOB episodes In context ↗
  • Headaches & migraineThe headaches I have are still fairly new and incidental. In context ↗
  • Anxiety & low moodday-to-day living is a depressing chore In context ↗

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